I have just received an email response from Karen Hargrave, one of the organisers of the #ThereForME campaign. She told me that she joined the...
I share your concern but important to note that the campaign has the support of numerous ME/CFS charities and organisations (listed earlier in...
@Jonathan Edwards From reading the other thread I’m not clear if you would disagree with what I’ve written above or not. If you disagree, please...
There is no doubt truth in what you say but it may also be overly pessimistic. This is purely anecdotal but I know two young women who are both...
I have often written that we need investment in research to develop diagnostic tests and treatments. What I mean by that is that we need tests...
I would say that disabling illness is a subset of disability. I also think that chronic illness presents additional challenges, which can be much...
Good thing know that Jo is much better. Is there anyone else you could invite to brainstorm with you and Jo? People from inside or outside the...
Maybe I’m just giving them too much credit and the contradiction never occurred to them. Or maybe it did and they didn’t care. I’m reminded of...
I may be misremembering. It may not have been Dave who tried to explain how they try to massage away the contradiction. It could have been a...
I remember @dave30th writing about the contradiction between the boom and bust concept and fear avoidance behaviour way back. My imperfect memory...
Action for ME's AGM is next Friday: 13th September. "All are welcome" To attend, register through their website:...
I’m very late to this conversation but I think this is exactly what we need with ME/CFS. Have you managed to have any of this type of conversation...
Article in The Canary by Hannah Sharland: “An ME/CFS charity has just shamed itself again. So why do people still support it?”:...
Thanks. She is also Chair of the charity Supporting Healthcare Heroes UK: https://shh-uk.org/meet-the-team/ Brian Hughes is listed a trustee of...
Thanks for sharing this. #ThereForME continuing to gain traction. Good to see them collaborating with Brian Hughes. Do we know Alison Twycross?...
I think it would be better to say that it shows there is a physiological basis to the illness which is not associated with inactivity – or...
Wow! The contrast with BPS researchers with multiple COIs could hardly be greater. Huge thanks to everyone working on this. And thanks to ME...
Yes, that jumped out at me as being an overstatement.
Don’t forget that the campaign is supported by: Action for ME Co-EQ Crunch ME Hope 4 ME Fibro Northern Ireland Keyworker Petition UK Long...
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