Would there be benefit in putting in a few cognitive questions or is this intended to be purely physical? Reading a book/working at a task on the...
Absolutely! I’m hopeless now at switching my attention - I find it very difficult to do, and it wipes me out. I can only deal with one input...
I do think it is possible that mild patients averaged around 8000 steps a day. I do that most days. Concentrating and cognitive tasks, noise and...
So really what they are saying is “we had to change the website because pesky patients were being difficult, but we still believe that exercise is...
And they have no idea how the virus spread to that family - it’s four family members who have tested positive. So far, no links to managed...
I say that my ME came on after parvovirus. A colleague at work caught parvovirus some time after I did, and she died from myocarditis....
I get fizzing in muscles when I have overused them. It’s not like bubbles or even vibration.... fizzy is how it feels. I can usually get rid of it...
NICE just seem to be making themselves a laughing stock....
My eyelids and eyebrows sweat when I am feeling particularly unwell.... and often my face goes very red. I can also have cold hands and feet at...
I’m sure we all know of people who have had their ‘unnecessary’ chemotherapy stopped... A family friend who suspects he has a recurrence of skin...
...because excessive exertion is often an activity that would be considered just part of normal daily life by people without ME. And daily life...
Milkweed kills warts i think...
I was told once that you could warm up your hands/feet by imagining warm blood flowing to them.... I’m ambivalent about whether this might be...
So sorry to hear that the docs still haven’t sorted the problem out @Graham - it must feel like you are stuck in a hamster wheel of ineptitude....
Welcome @Giada Da Ros to the forum! It’s great that you have come on here and I hope that you will find lots to be interested in.
Thanks @Invisible Woman and @Arnie Pye I was given a Graves diagnosis in 2012 when i first had problems. my T4 at that point was 36... and so...
Well - my GP won’t refer me to a specialist at the moment because I’m not technically hyperthyroid (yet). She thinks I’m over -anxious about it....
Thanks IW for the research! I’m just cursing my thyroid at the moment. None of the options look great. I had hoped that having had a number of...
My latest round of blood tests has showed that i am now ‘sub-clinically hyperthyroid’ - which is to say that my TSH is <0.01, my T4 is 16 and my...
It seems a missed opportunity not to look at why people with ME don’t have children... I’m sure there are lots of people like me who would have...
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