A polite email attaching JE’s submission to the Scottish parliament, with a very short explanation that this is an excellent summary?
I think I have worse pain if I don’t take LDN but having said that, it doesn’t make a huge difference to me. I have tried a variety of doses and...
I would like to sign....thank you for the work on this. I think it looks very good. Daisybell, person with ME and moderator on the S4ME forum.
And that’s why they are struggling to recruit participants/complete the study. I guess most of us have at least one other diagnosis.....
@Jonathan Edwards - moving into rheumatology now..... I see they are not calling it CBT and GET - but CBA and PEP (personalized exercise...
Sorry but I feel much better after a cup of tea!
https://www.washingtonpost.com/health/medical-mysteries/nearly-100-doctors-have-tried-to-diagnose-this-mans-devastating-illness--without-success/20...
Sticking to facts! FFS.
I’ve got kiwi just up the road in a DOC reserve..... you can stay @Jonathan Edwards !
It’s a shame that probably most of us won’t be able to fill this survey in... it requires you to have seen at least two medical specialists in the...
Re anaesthetics - my one and only experience has been of being hypersensitive. Out like a light and then taking ages to come round..... I wonder...
She still thinks it ‘works for some people’ - but I hope that she will think about the ethics of recommending a ‘therapy’ to patients that tells...
I think my GP must have been to this. Today she asked me if I had heard of Mel Abbott. I said that I thought anything that placed the emphasis on...
I really like that phrase ‘ effort is insurmountable’.
Those poor, weak people who just can’t cope with life....pesky, irritating little things. If only they could understand they need to be more like...
I think throat muscles, tongue muscles and jaw muscles work extremely hard... and that’s why they fatigue. I’m a SLT by background, and I’ve...
This is fantastic!
Thank you for coming on here @NeilH I appreciate that this is your story, and that we are all different. I’m still not sure that seeing not...
My mother must have listened to one of these radio 4 programmes. Now she is worried that maybe I have Lyme disease.....:banghead: I said I don’t...
Interesting to revisit this thread. My grip strength feels as though it has deteriorated significantly in recent weeks...
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