Just noticed that this letter on measuring improvement and deterioration with the Chalder Fatigue questionnaire is now Open Access:...
A preliminary scatter of hard task completion x physical function. Mistakes are possible so this should be double-checked by others with access...
Good news, Dr Walitt wrote back and directed me to a file for the EEfRT task in the mapMECFS datasets. It's under "Neurophysiology Data Files"...
Others with access to the data will be able to graph things for you better than I ever could! I think the standard deviations and numbers in...
The IDs in the EEfRT data (eg HV A, PI-ME/CFS B) do not appear in the mapMECFS data at all. The IDs in the publicly available data have been made...
The IDs are different in the publicly available data and the mapMECFS data. So I don't think you will be able to do this, unless I'm missing...
I looked at a few things you might expect to differ between groups if one group were having difficulty with the task. I hypothesised that a group...
I've made a correction to one of my posts above. 47% of patients had a lower success rate for hard tasks than all healthy volunteers.
Correction: My original post stated that 7/17 (41%) of patients had a lower success rate for hard tasks than all healthy volunteers. This should...
Sorry I was editing my post as realisation dawned that Murph's point could apply. I'll leave that to others to check.
I thought patient B might have been purposely giving himself breaks, as he had four tasks in the second half of his 53 trials where he only...
My second attempt, which addresses @Simon M 's 2nd point, but not his first, because his first is beyond me. Hopefully one or other of us will be...
Ooh I managed to do this bit.
Glad it made some sense. My brain can't follow this after chart-exertion, but other brains will and I trust they will reply and do what needs doing!
I've sent you a message! I wanted to do number 2 but my brain imploded at the thought of patients and healthies being mixed and at the thought of...
Does this help to visualise the fundamental problem with the effort task's validity when used to compare pwME and healthies? To me, it helps me...
Yes, they are reassuring - I felt it would be helpful to get clarity as there was speculation about the severity of patient participants. No,...
Short Form 36 Physical Function scores were not reported in the Walitt et al. 2024 “Deep phenotyping” paper, but I find them helpful to get a...
I'd add: - a belief that you can tell when the individual person in front of you is improving or deteriorating due to therapy versus when they're...
And to further clarify, all of the studies that have used a 2- or 3-point decrease in Chalder Fatigue Questionnaire score to indicate clinically...
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