You’re right to point this out – I realised in the middle of a rest last week that it would have been helpful if I had clarified that Adamson et...
When you click on the link to the letter (below) you'll see "Access options". On the right, beneath "Purchase content", it says "Rent with...
So sorry you're not able to access the letter and thanks for kind words. I can view it in Google Chrome but not in Microsoft Edge, so perhaps...
I've had a letter published in response to the Adamson et al article. It's called ‘Measuring improvement and deterioration in myalgic...
I have had a letter published in the Journal of the Royal Society of Medicine entitled ‘Measuring improvement and deterioration in myalgic...
Really sorry to hear your friend is so unwell. It must be worrying for you and for him. To give context to my comments, I was a Speech &...
For context, I’m a Speech & Language Therapist with severe ME. This is a general reply for the thread. I'm quoting some of @Jonathan Edwards '...
From what I can see (from a limited google!), home sleep studies are only valid for sleep apnoea e.g. So I'm not convinced they'd be of use....
For context, I have severe ME (housebound, not bedbound) and am/was a Speech & Language Therapist. I like the idea of trying to see what, if...
And yes, I am Kirke 2017! Not how I usually refer to myself, but thought it would be helpful to keep the post above clear.
Links to papers on patient surveys and to the surveys themselves below. In terms of patient-level evidence of possible harm from GET, there are...
Thanks for that. Hm. And the consequences of that can be that clinicians continue to recommend ineffective or even harmful treatments. I did...
I’m not convinced that the evidence for exercise being effective in fibromyalgia is much stronger than for us. (Although I get the impression...
Regarding the phobia vs fear-avoidance discussion above (a few pages above now!), I was thinking about this 2005 study by Gallagher et al, where...
My understanding is that supplementary file 1 bmjpo-2017-000233-SP1.pdf tells us how they used answers to items in other questionnaires to see...
I think it’s important to see how the IOM criteria work in clinical populations. I would prefer to see studies done by actually applying the...
If you liked Twisk's letter you may also enjoy... the thread with all the GETSET letters here:...
Hi everybody! This has led to a useful discussion, I think. Thanks to @Jonathan Edwards for the thoughtful response. The good news is that we...
Any chance we could lose the cardigan jokes? I wore a cardigan in work, a red one (speech & language therapist). I worked with people who wore...
In the section on treatment of “Dizziness and Orthostatic Symptoms”, Crawley states: “Treatment should start with behavioral methods, including...
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