@Justy I think so. I have experienced the excessive laughter, crying, high emotions. I don't like remembering my severe years and the anger,...
I haven't finished reading this but needed a break because I feel emotional reading this. He said some things I needed to hear about the...
How does one describe PEM in the severe years? Layers and layers of PEM is only way I can describe it. I couldn't bear to experience those full-on...
Yes, I've experienced the different delay times as well. It all depends on what the exertion was (gardening, mental exertion, noise, etc. to name...
Thanks for mentioning this @zzz I must read through the ICC definition again and refresh my memory. Good to see ICC has this 'Pene'. I hope they...
I wonder if it is neuro-immune induced weakness that some of us are feeling as well. When my ME is severe, or I have accumulated too many...
I saw a lady take a bad fall last year while walking with the Nordic poles. They tripped her up. So be careful with them. Anything we add to our...
I get the drunk-like swaying as well. I have to concentrate while walking (although, I am so used to dealing with this now after 20 odd years of...
At the moment it is mornings and evenings for me. In my severe years it was only in the evenings where I felt a hour or two more energy (not...
. I've changed my vote to 'secondary progressive' because my ME 'remitting' is really just a slight easing in symptoms due to resting.
. Thanks @JaimeS I see I missed registering the explanation within the brackets first time round.:banghead:
I don't understand what 'primary' and 'secondary' mean in regards to this illness. So I'm finding it hard to work out which describes me most.
I voted the 1st one but it could be that I am the 2nd, 3rd or 4th. My ME has been progressive through mild to severe and now I don't know what is...
I agree, a really important message @alex3619 . I should never have been smoking with ME. I am paying severely for all the years of smoking now....
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