I don't get blood tests that often but when I do I prefer they take it from my right arm. For some reason it is more painful on my left arm so...
@JaimeS I have to take extra care in the winter months. Something I came to notice some years into my ME was that my ME would deteriorate when the...
Could we have a list and a link to the donation pages for ME research for easier referral. Thank you.
Beautiful little girl @Mike Harley Congratulations to you and your wife. Thanks for sharing.
Hi @Sid :hug: I'm about to take a break from the forum for a while. I'm so glad I caught your post. I often think about the MEs with gut problems...
I experienced a permanent change in microbiome after an infection. Not the intestine though. I am pretty certain it was the pessary antibiotic...
Last summer I found placing a cold pack at my lower back really helpful. I was able to move around without feeling like I was going to collapse or...
I've caught a lot colds in the doctors waiting room. If your getting a flu shot you might want to wear a mask in the waiting room. Otherwise you...
Firmicutes in my nose sample were 45.49%.
@EzzieD I had the same bacteria Vagococcus at 7.4% as you in the throat swab results. Everything else was different to yours. Did anyone else...
If there are other members who would like to compare but privately as a group let me know by PEM (PM)!
Who do we go to to find out what these results might mean? I have an ENT appointment coming up next week. I'll take my nose and throat results to...
@JaimeS I get the throat problems too, too exhausted to talk, hoarse. I notice an usual taste in my mouth with severer PEMs. With very severe PEM...
I can't take the risk with the flu shot. Never had one. It was a flu-like cold that caused my mild ME onset and a very nasty flu which sent me...
@Forbin Very much what I experience. My gait gets much worse and I have to concentrate on walking. It's hard work and with the feeling like you...
I can't recall ever having an ear infection. I do get a thick feeling in my ears from time to time but that could be due to chronic sinusitis. I...
I think brain fog is possibly apt for some members because their cognitive symptoms are not as severe as others. @Trish Thank goodness we have...
I lost a lot weight at my severe onset also. I also couldn't make up that weight that I lost until I got to menopause. (14 years from severe ME...
Not sure about fasting. When I am at my sickest I get very weak with nausea and cannot eat. I start to improve a few days later with the help of a...
Same here. I used to be able to tone up to a level that I like in 3 weeks before ME. Since ME I can't tone up properly. When I do try I get severe...
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