I’ve only read the abstract, but it’s conclusion that vigourous physical activity has a modestly protective effect of reducing the risk of major...
To come back to the paper itself, I think what it shows that Is valuable is a kind of biological footprint of the illness – even if you can only...
Thanks, Veronica, you write so beautifully and evocatively about the experience of ME. And it’s great to have your work out there for others to...
Norwegian Patient Registry studies Bakken: 74% female, ratio 3.2:1, 5,810 G93.3 cases, hospital diagnosis Hilland: 79% female, ratio 3.7:1, 5,560...
NHS Hospital Episode Statistics Samms & Ponting preprint (thread) 80% Female/3.9:1, 100,000 cases diagnosed with the G93.3 code. This is the...
Probably not needed for most people here, but here's a lay summary I wrote for te MEA website. Research: Myalgic Encephalomyelitis is clear to see...
Thanks to @Hutan for splitting off this thread on sex ratios/female predominance. I was going to focus on the other big studies, but wanted to...
These three researchers Have done great work including their recent pan- European patient survey of Oval 11,000 people. Apart from looking at...
I've reread that paper. It's interesting and has some notable ME authors: Lucinda Bateman, Charles Lapp and Peter Rowe. However, there are issues...
I've just got around to posting about Veronica's Hamlet poem on Twitter. It's good to see it got some traction there: [MEDIA]
Copied post Bakken: this is the lowest of studies I trust. DecodeME is likely better as bigger and broader recruitment (doesn't need GP referral)...
Bakken: this is the lowest of studies I trust. DecodeME is likely better as bigger and broader recruitment (doesn't need GP referral) at 83%...
The severity data comes from DecodeME. (Sex ratio has been discussed elsewhere. I would be very interested to see any good papers showing a...
I'm no expert either, and I hope Chris Ponting will reply later. But my take is slightly different to yours. Of course, big samples mean it’s...
It's great to see new people getting involved in ME - this is exactly what the field needs, and hopefully there will be more new faces - and more...
I think it’s very important as perhaps the final nail in the coffin of the deconditioning hypothesis. Inactivity accounted for very little of the...
Thanks for pointing that out. :) It's what they explicitly state and published in the main biggest GET papers is the basis for GET (and the...
The Pace authors can't do that: they nailed their colours to the deconditioning-causes-symptoms mast. Likewise Fine trial authors. And thanks...
Helpfully, the Pace trial spells out the central role of deconditioning in their theory of why GET works. It seems pretty clear that if...
I’ve spent nearly a year in total living alongside people who must be even more deconditioned than I am because of severe physical difficulties...
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