It's really frustrating. Some of it, especially where they talk about how patients describe their symptoms to doctors, could be really useful. Do...
Starting with the fact that practically nobody with a chronic illness has a baseline capacity resembling a healthy person's, so the idea's...
ME bus drivers would be like our day trip to Scarborough in the 1960s! :laugh: The coach driver had had to stand in for another bloke at half an...
Or any social care for those who can eat, but need support with other aspects of their lives to stay as well as they can. There's been a growing...
What a fabulous talk.
I think that basically is the map for government-driven initiatives. They never seem to realise it's more effective if people on the ground are...
I've done N=1 trials with a class of inspiratory and expiratory training devices (various woodwinds), which suggest they: improve diaphragm...
Me too, it's been happening for about a week. Never completes loading in Firefox, Chrome or Safari.
I did the same thing using a benefits calculator, and my estimate came out as worse off—though in practice it would be the same, as I'd be given...
Thought I'd add this here—a link to Sonya's reply to @Trish's letter about the care plan....
I'm still impressed that Sonya saw and acted on the problem straight away. It would have been so easy for her to retreat into defensiveness. I do...
I'd also like to thank @Jonathan Edwards. And to ask him to pass on thanks to Sonya for the work she and her team members are doing.
I've been thinking about this too, but as it was more about a crisis team of doctors, it's probably not for this thread. It would be good to have...
A bit depressing, but not surprising. Doctors advising committees seem to feel that they need to have something to say, and that's when they...
Do you think they'd accept the position that in practice, patients know more about ME/CFS than doctors? I wondered if they might be able to come...
Perhaps underline that some of the more experienced heads in the community are really concerned about the direction the charities' collaborations...
I get the same problem. It's the absence of that particular focus used for playing. It should be just a switch into a different attention mode,...
Yes, I improve very slowly too. When I go back to swimming, it takes a couple of years to get my position in the water right. It also takes me a...
The Vagas nerve—is that the one that regulates gambling behaviour?
Thanks, @Andy, that looks interesting. I've just clicked through, and the info on the website says a recording will be shared afterwards—so those...
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