And we're putting up with it, instead of marching through the streets.
The analysis sounds like a specific panel: People can opt out of the remaining genetic material being stored for future research, but I suspect...
I'd be surprised, specially as it's such a small cohort and there's going to be data from a much bigger one (albeit only adults) available to...
Yep! But according to the optometrist, some people just do. I noticed it 20-odd years ago, but I'm not sure whether it changed or I just hadn't...
Me too! That's part of it, but it also feels exclusionary because most people won't know what it means—it even stumps me sometimes because it's...
Disinformation is only 'politically vital' to those with certain political affiliations. You could make an interesting film about that.
One more, and we'll have 3704 x Nelson. :D [SPOILER] ETA: Completely inaccurate. Never, ever trust my maths. :rofl:
Exactly. If that proportion of any profession were shown to have ME/CFS, (a) there'd be an enormous amount of interest, and (b) the profession...
Funny, though, that there's been no trial of the reliability, accuracy, or usefulness of questionnaires, yet they can be assumed to be a valid...
No, I say P-E-M, and most of the people I know do. That might be the reason I think it's the norm and 'pem' sounds really weird, though! :D
If WE&ME is on Twitter/X, I wonder if they'd be willing to draw the attention of Österreichische Gesellschaft Für ME/CFS to the petition? They...
There's also the issue of academics being expected to publish ever more papers, ever more frequently. Why? Surely they should be judged on the...
That's an interesting point, actually. The questionnaire seems to acknowledge that pwME might do tasks more slowly than a healthy person, but that...
I can see the argument for that being justifiable in relation to sources (though I'm not sure I necessarily agree), but there's no harm in...
Sorry for the duplicate post, I did a search before adding it but obviously picked the wrong terms.
Exactly, that's what I meant about using them in other contexts. More than one GP at our surgery has suggested using them for activity and heart...
https://www.nature.com/articles/s41586-024-07501-1 Also reported in The Guardian (UK):...
Ohhhh, they're well worth reading! There are a lot of them, and it will probably make most sense if you read them in date order as and when you...
I really like it too. As @ME/CFS Skeptic has added a heading examples of excellent reporting, I wonder if next to it there should be a category...
I'm suspicious about the motives behind the assertion that technology isn't acceptable to the NHS because of accuracy, privacy, or whatever. Not...
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