This. The questionnaire shows zero understanding that our ability to do all activities is completely conditional on (a) how many others we've...
Anything that needs rhythm (walking, playing music), balance (walking, moving from standing to sitting), spatial relationships (going through a...
For anyone who needs cool drinks in warm weather and can't keep visiting the fridge, I recommend these ice packs. [ATTACH] Earlier on I'd been...
I've tried it, but there doesn't seem to be a relationship between heart rate and PEM. I kept careful records for a good few weeks, but found I...
I knew about it, but as I don't (and won't) have an X account, I couldn't follow it.
If they wanted to recruit people who'd recently been treated by a clinic, it might produce a group that can give insightful feedback on the...
Luckily a workable clinical review tool exists already. Typical question I'm asked: "Is there anything you've been struggling with more than...
Given the discussion on the thread about the MEA-funded clinical assessment tool, the session on clinical trial design might be an opportunity to...
I hope the list of activities includes filling in pointless questionnaires.
That probably is different to introversion, as severe anxiety can be physically exhausting. My only proper taste of it was when required to speak...
As an autistic introvert from a family of introverts, I can happily confirm that it doesn't resemble PEM in any way. Not even a...
Yes, which first goes out on Tuesdays. The other possibility is You & Yours, which although it's often described as consumer oriented, does...
I'm not sure. It seems to be accepted that natural recovery is possible in ME, and we really need to know what proportion does recover and how...
Not necessarily. People with a reasonably well established viral trigger (e.g. a positive EBV test in the months beforehand) may still have a...
According to the error message I received, even if you have a Microsoft 365 account (I do), it needs the email address linked to the account to...
Especially as, if we accept that ME/CFS has a clear association with Epstein-Barr virus a clear association with COVID-19 virus we have enough...
Hear hear. Me: Onset 1976. Diagnosis 1999. Aunt: Onset 1935. Diagnosis 2006.
Separate names with a comma.
