If that's real, it might explain something of the odd intolerance to simple carbs some pwME have. I have to avoid them, because my muscles stop...
My mam kept seeing penguins following the staff about. She asked the nurses how they'd manage if they were in a rush and the penguins got in the...
If they really wanted to know what symptoms recent-onset people have, they wouldn't prompt them at all. They'd ask them to describe in their own...
Also if we're talking about the risk of triggering a cascade of events ending in severe ME/CFS. Because it's noticeable how few people say their...
I always find the adrenaline surge doesn't come in until near the point of exhaustion on Day 1. It's the reason I often don't sleep that night,...
That's exactly the point I keep labouring. Hospital consultants use all their training and experience to frame their questionnaires, and most seem...
That's an interesting idea. But if they're trying to understand how PEM might be generated, wouldn't the study also need to take samples whilst...
So sorry to hear you're in such a bad way, Sally. It sounds horrible. Only two things to suggest and neither might be all that helpful. First is...
I don't know whether there is a direct relationship between blood pressure readings and OI. I've had both [low blood pressure], and even the...
As an aside: If anyone needs a more robust version of this kind of portable chair (perhaps not for hospital, but maybe the garden), search for...
I wonder if they've any idea, at all, how many times these questions have been asked and investigated. I keep seeing my mam's eye-roll when some...
Thanks for framing some clear questions. I may send something along these lines to my Labour MP, saying that if they really want to know, they...
They already are. In 40 years of trying they've produced no evidence of a biopsychosiocal basis for ME/CFS. We need to keep asking the same...
It's an important process for members with no science background too. I've learnt so much from these discussions, but cognitive impairment and...
:rofl: What a Christmas card. Next favourite is the one from the jeweller I bought a gift from in 1997, who bafflingly still has enough hope I...
I've only qualified for it for a few years, but every time it feels like a calculated insult.
Me too, I'd never heard of them until I read this. Interesting idea. Anatomy has the best names. The crypts of Lieberkühn sound like somewhere I...
Yeah, I have one for swimming to help get from the changing room to the pool hoist, I feel unsteady on a wet floor. Bought it secondhand from a...
If anyone's interested in joining Benefits & Work but is a bit short of cash, try signing up to their free email newsletter first. It usually has...
It's tough. I was forced into years ago because I was still working in a large building, I couldn't walk round it, so it was either get a powered...
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