I'm assuming that DecodeME [GWAS - common variants] would have clues -- highlighting that the mechanism is immune related? E.g. in Alzheimer's...
@Lena Kjempengren re the harms that the psychological approach can bring this quote (from a nurse) comes to mind- "The bastards don't want to get...
@Lena Kjempengren you could highlight the rituximab trial methodology (all clinical trials are registered). Specifically highlight that the trial...
Isn't there a Greek drink which would provide this --- retsina!
@Lena Kjempengren it occurs to me that this* could be a useful way to rebut CBT i.e. if the outcome is this poor then how could it be justified to...
So this is (Norwegian) guidance on fatigue i.e. rather than ME/CFS? @Medfeb @Lena Kjempengren might be a good idea to check the outcomes from the...
Oh you need to highlight that subjective outcome indicators are unreliable - Google something like "measuring activity levels Actimetry versus...
Really don't feel I understand this topic but I think the issue is controlling for deconditioning i.e. you'd need controls with very similar...
DecodeME might just provide clues e.g. infectious trigger (leading to POTs) may be reflected in genetics assessed via DecodeME.
The system now in the Northern Ireland (devolved/regional Assembly) is that the relevant scrutiny Assembly committee [scrutinises the Department]...
"directions to relevant resources" - obviously the NICE review is a place to start* I've been surprised that it includes a review of...
Jonathan explains these things much better than I do (see above) but perhaps look at PACE - subjective outcomes indicated that people improved...
possibly unrelated --- at best tangential --- the interest in cerebrospinal fluid & ME/CFS revolves around intracranial pressure - which is...
Yea heard something about this ---[medical Doctors] are retiring earlier. Incentives like this can be considerable --- continue in the job and...
When I looked at these graphs I thought --- basically there's no difference between the two groups -- just the sort of "noise" you'd expect...
I gather, from what a neighbour has told me, that there's quite a bit of work involved in maintaining your registration - demonstrating you've...
If a public service [NHS England] is launched then it's reasonable to ask that appropriate monitoring is included --- in fact that's Government...
Sounds like a good idea. I attend these meetings -...
Action plan?
I was wondering if post election we ask a parliamentary question re how these interventions are being evaluated; in particular are real world...
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