"increase confidence in symptom self-management" If I meet someone having a heart attack I must remember to --- increase their confidence in...
What a title: "The Good Hope Exercise and Rehabilitation (GEAR) Program for People With Ehlers-Danlos Syndromes and Generalized Hypermobility...
Thank you.
Dam cheek - society barely funds any research and e.g. countries could provide specialist services and support intensive assessments/testing to...
Thank you for your coherent reply. Sorry you're health is so poor. As I read your reply, I thought - have I suggested ME/CFS is untreatable? The...
Question - why has no one, to our knowledge, coincidentally taken a drug which cured their ME/CFS? OK rituximab was thought to work i.e. after it...
Actually “learned helplessness” leading to genetic studies, actimetry/sleep studies (to try to improve functioning in the short term), would be...
[EDIT - hadn't read the comments above before posting this!] Yea we don't know the underlying disease process in ME/CFS, or long COVID, so why...
Indeed - I'm in favour of researching anything that improves the health of people who are ill - may turn up something but I'd have thought a...
Not sure if it helps the discussion in terms of neurological associations (ME/CFS)-...
Yea and why publish crap when you could easily include objective outcome indicators like FitBit, hours worked, attendance at school/education ---...
My education lets me down but reading this made me chuckle "Delphi process" ---- does that involve visiting some "mystic" who says some profound...
Yea trialling medicines is one way of understanding ME/CFS and potentially treating it. Sometimes there's an accidental finding (e.g. treating...
One for @Snow Leopard - from memory you are interested in the NO pathway, vasodilation.
Think it was this program* which highlighted that the UK spends roughly the same as Spain & Portugal on the health (NHS) - countries like France &...
From Wikipedia: "Endocytosis is a cellular process in which substances are brought into the cell. The material to be internalized is surrounded by...
Yea I was really impressed by the statement @Simon M Typical of the professionalism they have exhibited.
The UK Government/establishment have form ---- think PACE, Crawley ----. So perhaps disappointing rather than surprising. That would surprise...
I wonder if the reason is that if you provided (free) genetic data then a lot of people (who do not have ME/CFS) may be inclined to apply to...
Yes, Sir Humphrey and the survey comes to mind - you can get any answer you want --- if you don't care --- [MEDIA] EDIT - should have added this:...
Separate names with a comma.
