I did respond on Twitter & highlighted that I'd created a discussion thread here! [MEDIA] [MEDIA]
Merged thread Post on Twitter/X* re reactivating European Network on ME/CFS (EUROMENE) - noticed a question --- purpose? Ideas guys? Here's a...
Is there an opportunity to push for this through the group you sit on (which deals with research priorities?)?
Article here* noticed that they use engineered virus to look for autoantibodies - similar to the approach of the group at Yale [Aaron Ring etc....
Wondering what a possible question would look like - "Secretary of State/Minister may be aware of --- Will the SOS/Minister ensure that there is...
Reminds me of my last job (I've just retired from a junior level post in policy development) - you're strategy is a "go to" - problem x --- anyone...
I think there's a general point e.g. if you can't objectively measure "identity construction" then I'd suggest that the whole exercise seems...
I could ask my MP to e.g. ask a (Westminster) Parliamentary question - but before even attempting that I'd need to be convinced that it would be...
Hi, there's an excellent thread on this forum re measuring outcomes from interventions* - basically this community is strongly biased/focused...
Vey good question - perhaps respond to the main UK charities and ask that they highlight their concerns to the coroner i.e. that nutritional...
I think you're suggesting that a coroner, having reviewed the evidence, couldn't put out a circular highlighting initial concerns re need to...
Maeve Boothby-O'Neill ?
I have no knowledge. However, if you have a formal diagnosis from a doctor then I assume that it is relevant - presumably the NHS doctor would be...
This talk came to mind when I read Jonathan's comment (above) - NIH Metabolomics webinar -Shuzhao Li Jackson Laboratory (slide 50.08 minutes from...
Yes i.e. you'd need to see the methodology. Interesting to see the responses (above) to the claimed figure {43% [34-51]} - thanks. EDIT - note -...
Sure I'm reinventing the wheel here - what would you tell a researcher new to ME/CFS (heads up) - the PACE debacle and how the community has been...
Maeve Boothby-O'Neill comes to mind . I wonder is someone like Sajid Javid could be recruited/asked to raise this with the relevant Westminster...
Haven't been following this & I've very little knowledge, but that seems to sum it up - treat them - prevent them dying unnecessarily.
I assume you just join i.e. create an account - user name password & the post --- all free --- I joined years ago but only really used it...
I'm not surprised that DecodeME "is not looking at family links ( at this point in time )". If I recall correctly, the NIH expert panel*, which...
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