Hi @aguilarj2 Do you mind a few questions? - Do you have a fuller description of the goals of your research? - Can you explain the source of...
True, its cumulative incidence and lack of recovery. But still, would we really expect prevalence of ME to rise in every 10 year interval and be...
I've just skimmed the paper and havent dug enough to clarify what they did but have the same concern as the prevalence paper. This is a US data...
This is an important point. I think we are likely to see this issue come up more often as researchers attempt to use medical records or patient...
Fantastic letter! Thank you, @Trish
Yes, of course. Totally agree, they played a significant role in the CIBA proceedings. I was thinking of Straus' ongoing engagement with UK...
I agree - NIH had a direct role in endorsing/accepting the UK BPS model and in perpetuating the neglect and misunderstanding. So NIH leadership...
This situation is a quagmire that is going to take many years more to correct if we wait for normal institutional processes to fix this in their...
Interesting point. Thanks for posting I'd think that up to certain age, the high rate in prevalence in older patients could also reflect the poor...
But most of those 8 symptoms are not unusual or distinctive and there are 163 different combinations of them when you specify any 4 of 8 symptoms....
@Michiel Tack - good point about continuous enrollment. That would certainly help that. And you are right about the US epi studies - remarkably...
Thank you, @Trish I added a delimiter to make it easier to see the separate articles and links to the threads
Agree with both @Michiel Tack and @Webdog's posts. The ME cohort is certainly better than the CFS cohort. And Kaiser's decision is encouraging...
@Trish - If you have time, that would be fantastic. I was hoping to get to it later but not sure when Thank you!!
Here's the current list of articles - hopefully I have not screwed up the copy paste 1. Estimating Prevalence, Demographics, and Costs of ME/CFS...
Frontiers in Pediatrics is publishing a special issue on ME/CFS. The articles in this issue are being published one at a time as they become...
This article is part of a special issue being put together for Frontiers in Pediatrics. These articles are being published one at a time as they...
Thanks for posting, @Michiel Tack There are a number of useful analyses here. There are also a number of important caveats that need to be kept...
Not sure if this is useful but in case - have you seen David Systrom's interview by Llewellyn King? Systrom discusses the findings of invasive...
NIH issued an RFA for collaborative research centers and received 11 applications of which they granted 3. Certainly, some of those other 8 were...
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