Are you asking whether the community should challenge medical providers not to use the IOM criteria, the SEID name or both? Regarding the IOM...
In the US, the IOM criteria are being implemented and when medical educators and medical societies have used the term "SEID," it is explicitly...
Definitionally, the CFS criteria never require PEM and other hallmark criteria. But PEM is a hallmark of ME. Because of these definitional...
Yes, "CFS NOS" needs to be retained for data aggregation purposes. But "CFS NOS" is proposed to be retained under the subcode for "CFS" and is no...
@Inara - The ICD-10-CM and disease name situation in the US is an mess. Historically, US medical education providers and doctors have used the...
@Inara The IOM explicitly stated that "a diagnosis of CFS is not equivalent to a diagnosis of ME" in a discussion of CFS and ME definitions. It...
In a nutshell, CFSAC, the US government advisory committee that provided recommendations for action on issues related to ME, was disbanded by HHS...
"Models are not neat, packaged, irrefutable explanations" Exactly! Models are used to organize thinking so you can test and refine. And they are...
That's what Dr. Komaroff has said. He was added as a section chief at the point that he agreed to work with them. UpToDate's last update...
Thank you for posting on this. I agree this book is a really useful lens to look at a pivotal point in the history of this disease . I agree - the...
Thank you, @Trish and @Dolphin
Yes! One is too many!
I'm trying to get an answer to the following two questions on the BPS treatment trial evidence base and wonder if anyone knows off the top of...
SMCI has put out a call for those in the US to contact their congressional leaders and ask them to "create and pass legislation creating a new...
Moderator note: This thread combines all threads on the CFSAC closure to save confusion and duplicate discussions. It includes links to...
I appreciate the concern that this could exacerbate a patient's condition. BUt I've also seen the 2 day CPET be the deciding factor in a positive...
I agree that the ideal is randomized clinical trials, particularly blinded ones. And I appreciate the concerns that inappropriate practices could...
Its all muddled. He's mixing up WHO's ICD-10 with the US specific ICD-10-CM in which CFS was put into the symptoms chapter. And the ICD-11 comment...
Yes, I agree. To me, CDE is at best a step toward aligning on particular instruments that might be used to assess different domains. But most of...
Totally agree that biomarkers are the answer. But we have a catch-22 since getting biomarkers requires fairly well characterized cohorts and as...
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