Just to clarify - CDC's website is dealing with clinical criteria. My comment was referring to research case definitions and the Common Data...
This could happen with all other definitions as well, including the ME-ICC. The problem isnt just the definition used, its how the definition was...
Stunning. Did they give a reason publicly or privately?
@Esther12 - thanks for posting these comments. Do you happen to know what this refers to? And what's the general opinion of BACME? I saw some...
That's great, @eshmo and @Melanie
The IOM report was requested by the HHS, right? Yes. By multiple agencies at HHS funded this and I believe also Social Security Administration...
@Melanie Would this Tuller article on harm from GET be worth submitting? If so, how? https://undark.org/article/chronic-fatigue-graded-exercise-pace/
I'd like to reiterate Suzy's suggestion that this forum might consider identifying 2 or 3 people to keep an eye on this and also come up to speed...
The first letter had 35 but then it was reissued with 50 signatures...
I dont see this as an either/or issue. These studies had problems with study design and methodology AND they also used case definitions that...
That's well overdue. Did you find something that said that? Or is it that Reeves is not listed on their definitions page? I suspect its not...
Yea, I agree that CDC needs to be careful about what treatment it promotes. The problem for me is that isome of the statements the site makes...
Of course you are right - there are no trials that spell this out. But that, especially in the face of the exercise is good medical narrative, is...
Great point. Activities of daily living can use up or exceed a patient's capacity
I agree. But the problem is that while its getting better, the CDC's site lacks the specificity that is needed and that you would expect one of...
Yes, true but that section was intended for the general public, not for health care providers. I was referring to the need to a HCP page on...
@MsUnderstood I get the concern about the disclaimer. But I am wondering if this statement might allow more information to be posted on this...
Yes, that's what I have. Thanks for emailing
I emailed but did not get a reply. Perhaps a bad email. If they send me their email, I'll be glad to update the list
IMO, this would be preferable to guidelines that try to cover everyone. Regarding "treated immediately" - the key question will be how. I know of...
Separate names with a comma.
