But mild and moderate cases of what? While its true that studies like PACE included some patients who experience PEM, GET and CBT were never...
I agree that all people who do not fit a defined syndrome also need care. But I think it would be a problem if the NICE ME/CFS criteria were to be...
I am admittedly unfamiliar with how British GPs use guidelines. But that sounds concerning as it suggests that ME/CFS will continue to be equated...
I was referring to what range of clinical presentation the new ME/CFS NICE guidelines are intended to cover. They are not intended to encompass...
If PEM is not one of the key hallmarks of the condition, then what is the range of clinical presentation that will be covered by the new NICE...
I agree with you on this - like Cochrane, the AHRQ review also failed to properly consider the serious problems with these studies - what the IOM...
Just to clarify - the AHRQ evidence review was not done by an AHRQ "committee" but was commissioned by them and done by one of the evidence review...
I appreciate your point. But presumably evidence-based clinical guidelines for a particular disease should be based on an evidence base of good...
At this time, both ME and CFS are included under "postviral fatigue syndrome" in the the neurological chapter in the version of ICD-11 released...
They emphasize that this will be based on the evidence and they acknowledge the questions on CBT and GET. But they fail to acknowledge the...
@Robert 1973 - just an FYI in case its useful to you CDC updated its website on May 18 and added a section on managing PEM. Some of the text is...
The following might be US specific.... Our ability to accelerate progress in research is throttled by the number of well-characterized patients...
Numerous US reports from e.g. NIH, IOM and AHRQ (Agency for HealthCare research and quality) have noted that research has been confounded by...
Both the $190M and the $250M estimates were based on a prevalence of about 1M. The $190 figure also incorporates estimates of disease burden...
RFAs come with committed money before researchers ever submit. - the center grants had $35M for 5 years committed when the funding opportunity was...
Hi Webdog - do you know if they have looked at what AHRQ had to say about evidence of harms?
This is fantastic, Webdog. Thank you for your persistance and for sharing the twitter PM.
Here's a post from Suzy on this letter on PR...
Agree that it would be a good idea to contact Suzy Chapman I have some concerns with this letter. First, the letter states the following: Many...
I agree that Cochrane is not appropriately assessing the trial methodologies. That may have to do with their placing these reviews in the mental...
Separate names with a comma.
