There are functional disorders programs in the US as well - this one at Mass General and another at Stanford. They call if Functional Neurological...
Suzy - I've heard back from Ms Ramirez that the Excludes1 on G93.3 will be "chronic fatigue, unspecified (R53.82)." The current listing was in...
Thanks, Suzy I've contacted her as well. Will let you know what I hear
Presumably the actual text written in the diagnosis is still in the system also so the person's doctor should know that history. But you are...
Agreed If I remember correctly, the presenter at CDC's recent community call for ME (who recommended graded exercise and CBT) stated that FM and...
Exercise reportedly helps people who have FM without ME but not people with both
Yes, this was not as presented at the meeting and appears to be an error Thank you for investigating and reporting, Suzy.
Thank you for posting this, Suzy. For everyone, I've included additional context below on the US ICD issue and its impact, what the orgs actually...
Yea, remember that. And because CDC has refused to address it, they have given the space for clinicians like Gluckman to continue to recommend it.
Yes, they failed to look at the evidence properly but driving that was their misconception about the nature of the disease. Reeves, the leader of...
Exactly.
Labels aside, Strauss was quite disparaging of people with ME and disbelieving of what they were experiencing. In one scientific paper, he...
In the case I'm most familiar with, Long COVID resulted in a worsening of pre-COVID functioning and symptoms and the addition of new symptoms that...
Dr. Natelson uses Fukuda to diagnose ME/CFS... From the Mancini paper - "ME/CFS was considered present if at least 1 life sphere criteria was...
Wow. I don't think I've heard of people having viruses reactivated with Imunovir. Good to know. Thanks, @Mij
Thanks, @Mij. Did you have a known trigger to your relapse or did it just happen with no obvious cause?
Interesting comment. Often, I've seen a post-infectious illness suggested as a diagnosis when the duration is less than 6 months. Could you expand...
This! Maybe that's considered a feature, not a bug
@Hutan - speaking for myself, MUPS is a clinical thing only in the minds of those who promote it. IMO, it's unscientific to base a clinical entity...
Sorry for not being clearer. My understanding is that based on studies showing reproducibility with other diseases, she had expected to see it...
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