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  1. Lucibee
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Here's the ISRCTN registry entry for MAGENTA - https://www.isrctn.com/ISRCTN23962803
    Post by: Lucibee, Mar 4, 2024 in forum: ME/CFS research
  2. Lucibee
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    I can't find anything registered in ISRCTN. I guess that's a good thing? :/ eta: But then, there's always FITNET......
    Post by: Lucibee, Mar 4, 2024 in forum: ME/CFS research
  3. Lucibee
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Presumably that's why GET has morphed into GAT etc?
    Post by: Lucibee, Mar 4, 2024 in forum: ME/CFS research
  4. Lucibee
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Magenta was in progress between 2015 and 2018 (recruitment closed in March 2018).
    Post by: Lucibee, Mar 4, 2024 in forum: ME/CFS research
  5. Lucibee
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    The study page is here: https://www.rcpch.ac.uk/work-we-do/bpsu/study-severe-chronic-fatigue-syndrome-myalgic-encephalitis-cfsme just looking at...
    Post by: Lucibee, Mar 4, 2024 in forum: ME/CFS research
  6. Lucibee
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    All the ethics approval letters are also here:...
    Post by: Lucibee, Mar 4, 2024 in forum: ME/CFS research
  7. Lucibee
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    Here are the descriptions of the therapies from the supplementary material provided with the 2019 protocol paper:...
    Post by: Lucibee, Mar 3, 2024 in forum: ME/CFS research
  8. Lucibee
    Post

    Graded exercise therapy compared to activity management for paediatric [CFS/ME]: pragmatic randomized controlled trial, 2024, Gaunt, Crawley et al.

    It feels like we've been waiting for this trial for at least a decade... (2015ish?). Anyway. I thought it might be useful to tie together a few...
    Post by: Lucibee, Mar 2, 2024 in forum: ME/CFS research
  9. Lucibee
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    I wasn't suggesting saying the opposite... (although if there is persistent/reactivated virus then antivirals may well be helpful to some). It...
    Post by: Lucibee, Feb 26, 2024 in forum: ME/CFS research
  10. Lucibee
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Likely it's to conserve energy. Fighting against organisms that are trying to hijack your cells to their own ends is an energy intense enterprise....
    Post by: Lucibee, Feb 21, 2024 in forum: ME/CFS research
  11. Lucibee
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Just seen this Science article about it:...
    Post by: Lucibee, Feb 21, 2024 in forum: ME/CFS research
  12. Lucibee
    Post

    Channel 4 News 19 February 2024: Features Clare Norton, mother of Merryn Crofts

    Also, their FB page: https://www.facebook.com/Channel4News There is also an address and phone number:...
    Post by: Lucibee, Feb 20, 2024 in forum: General ME/CFS news
  13. Lucibee
    Post

    Balancing the value and risk of exercise-based therapy post-COVID-19: a narrative review, 2023, Singh, Chalder et al.

    It looks like something has gone seriously awry with the reference citations. Todd has also spotted it. [MEDIA] I suspect he'll have more to...
    Post by: Lucibee, Dec 22, 2023 in forum: Long Covid research
  14. Lucibee
    Post

    New book: 'Breaking Free' (PASC: ME and Covid-19)

    Looks like Gez has found it... [MEDIA] ...so I did a bit of a google of Janet's therapy company... [ATTACH]
    Post by: Lucibee, Dec 19, 2023 in forum: General ME/CFS news
  15. Lucibee
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Just had an update email:...
    Post by: Lucibee, Nov 10, 2023 in forum: 2021 Cochrane Exercise Therapy Review
  16. Lucibee
    Post

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Just had an email update:...
    Post by: Lucibee, Nov 10, 2023 in forum: Petitions
  17. Lucibee
    Post

    Review The long-term health outcomes, pathophysiological mechanisms and multidisciplinary management of long COVID 2023

    Update: I've done something. I wrote to Springer Nature Research Integrity dept, and they are going to look into it.
    Post by: Lucibee, Nov 8, 2023 in forum: Long Covid research
  18. Lucibee
    Post

    Review The long-term health outcomes, pathophysiological mechanisms and multidisciplinary management of long COVID 2023

    Just to add: One of the Editors in Chief of the journal - Signal Transduction and Targeted Therapy - is Prof Yu-Quan Wei, who is at the same...
    Post by: Lucibee, Nov 4, 2023 in forum: Long Covid research
  19. Lucibee
    Post

    UK Government ME/CFS Delivery Plan (includes Attitudes and Education Working Group and Living with ME Working Group) and consultation

    Reminder that the deadline for the normal online survey is today (4 Oct) at 11.59pm...
    Post by: Lucibee, Oct 4, 2023 in forum: News from organisations
  20. Lucibee
    Post

    Dr. Anthony Fauci on Long Covid and ME/CFS

    Hmmm... methinks Fauci is trying to rewrite history somewhat. Or maybe, not so much rewrite, but establish it - as it is very difficult to find...
    Post by: Lucibee, Oct 1, 2023 in forum: Long Covid news
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