There are some good points there.
And I've spotted another discontinuity in the IDP related to the Transforming Support white paper... In the survey, in relation to the Employment...
There does seem to be quite a lot of overlap. The white paper is mentioned in the IDP, but only appears under one agreed action (in Improving...
In case it is useful to anyone, my "master doc" is over on this thread:...
It is presented as a cross-government interim plan: "The government is committed to supporting all people living with ME/CFS. On 12 May 2022 the...
The one helpful thing about the easy-read version (ERV) is that the summary is included in full in the survey doc itself. This seemed an...
If that's how Q11 is displayed, they are using an incorrect copy of the CFQ. It should also have the options "Better than usual" >>> "Much worse...
Because it's not important to them, and never was. This all linked to increasing the prevalence of psych(ish) disorders that fall into their...
I just wanted to link through to somewhere that discusses the CFQ and its problems, because I had another, closer, look at the original...
I've finally got round to writing this up......
ME Association have just posted this on their Facebook page:...
This was more recent: https://www.ouh.nhs.uk/news/article.aspx?id=1826&returnurl=/news/default.aspx&pi=0 But if he is now Emeritus (or...
This article (of which this thread is about, which I'd entirely forgotten about) appeared in a search for something else this afternoon, and it...
Have they said they will do this?
Just to update - this now seems to have been removed, but Wayback has a copy or two:...
I'm a little confused as to what the status is now? The IPD review has recently been cited in the JNNP Anomalies paper in the last paragraph as...
Interesting series. Here are the links to the individual papers. Respiratory sequelae of COVID-19: pulmonary and extrapulmonary origins, and...
If I could reply, I'd say, "Sometimes, being able to influence policy that agrees with and promotes your ideology is payment enough, isn't it Prof...
Yes - it should be 56 (not 52).
It's really hard to know how to interpret this report. It seems that many of the trusts (and AfME themselves) seem to have taken Q1 (Has [NHS...
Separate names with a comma.
