... that number is from only 22 of the 162 trusts (1 in 7). They don't provide any info of what population % those 22 trusts represent. And there...
Full report is here: https://www.actionforme.org.uk/uploads/images/2023/05/Action_for_M.E._-_FOI_report.pdf
For reference, WAMES asked Welsh Health Boards about implementation of NICE guidance last year:...
Hmmmm... Action for ME need to sort out their media strategy. Well done them for getting an article about the report in The Times this morning,...
Oh my! So they actually designed it for "chronic fatigue syndrome", and then make no mention of the fact that it then couldn't discriminate...
Well, yes, it's the same questionnaire. @Trish 's point about discrimination between burn out and depression is fair too.
I don't know whether this has been posted elsewhere on this forum, but here's the questionnaire used for the primary outcome - Checklist...
I asked Betty Raman (the corresponding author) whether they were planning to use a better measure than CFQ for the phase III study. Here is her...
I'm sure I've commented on this somewhere before, but in case I haven't... There are restrictions to being listed as an author in The Lancet....
Nice demo of PEM/PESE in figure 10: https://journals.plos.org/plosone/article/figure?id=10.1371/journal.pone.0280343.g010 But only in 10% of...
Not quite the same as saying "avoid exercise and activities that cause PEM" though, is it!
Also noticed that in the Pulse article, it says that the "home-based pacing protocol" was "developed by the [Leeds] research team for the World...
It looks like they've left out the crucial bit of the WHO protocol [pdf], which is:
Further to this post about Darrel Ho-Yen's GP Magazine article about support groups, I've also looked back at his interaction with Wessely et al....
Sorry it's taken me so long, but the blog post about it is now up:...
It's taken a while, but I've finally managed to get hold of an article that was cited in relation to self-help groups by Dr Darrell Ho-Yen. To...
I think it's Richard Ramyar. I have never in all my years working as a medical editor known such obtuse opaque language. What on earth even is a...
I get the impression from talking to FNDPortal about his article that FND is taken a heck of a lot more seriously than ME was/is. But maybe...
Thinking more about this, and trying to recall the order of events at the time (tricky). Things have got somewhat conflated here. What I think we...
Sharpe mentions "false allegations about the trial", including of fraud, in the briefing document he sent ahead of the Westminster Hall debate on...
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