Yeah. It's funny how all the CFS/ME clinics (up until yesterday) were claiming they offered 'NICE recommended CBT and GET (as per the 2007...
I think their statement that they see ME as a' disorder of the nervous system' is made in the context of Functional Neurological Disorder also...
I have an emergency dental appointment for a broken tooth at 9.30am tomorrow (the time of day I am usually asleep). So I wouldn't have been able...
I can see the need for a book to be written about this whole process and what it has exposed. There's way too much there for just a series of...
I think maybe NICE reading the stakeholder comments on the draft from organisations such as the ABN will have opened their eyes to the extreme...
I've just started reading some of the stakeholder feedback comments on the draft guideline. Shocking! I think the Mods may need to set up...
I wouldn't be seeing them for ME, my neurological symptoms are not the common ones seen in ME. I can't get life insurance without them being...
Exeter hospital is near me and that is where David Strain works (although not in neurology), so I am considering asking to be referred there. I...
Me too. I have been sitting on a neurology referral for some extreme symptoms since 2016 and haven't seen my GP in person for about 3 years. These...
The females get the BPD diagnosis (because of their past trauma and autistic difficulties being internalised) and the males tend to get an...
I think the autistic community is trying to get the full symptoms of autism recognised, particularly for those individuals who have previously...
This happens all the time in Psychiatry. It's happened to a lot of autistic people I know. Some have had their childhood autism diagnosis changed...
Did this survey clearly differentiate between those patients who met a strict ME diagnostic criteria with PEM and other symptoms, and those who...
Yes. I felt this is still a major issue in the new guidelines. It's another reason I don't like the widening of what were originally specialist...
I hope that the publication of the final NICE ME/CFS guideline will serve to set a precedent for NICE in terms of them learning how to put a stop...
How did you do that?
Here Trudie Chandler explains what CBT for 'CFS' is: [MEDIA] Edit: For some reason copying the web link automatically just brings up the...
I think there is the historic problem that ME/CFS has been treated like a mental illness, where the 'recovery model' is the norm, even for...
Definitely nothing to do with any criticisms of the PACE trial :rofl: Also, when did she stop being the Chair of BACME? Presumably this role was...
Your experience pretty much mirrors mine, although I can't use anything like compression wear due to my skin sensitivity (I've had this since a...
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