This would be the same Gabrielle Murphy who resigned from the NICE guideline committee because she couldn't support the finalised revised guidelines?
Yes. This would seem to point to the fact that their is an underlying pathology (or pathologies) in ME. That is why I am very cynical about the...
Yes. it seems from my reading of the standard fall-prevention clinics that they think falls are due to 'frailty' and their courses are only aimed...
Understanding why PWME suffer from falls and working out the best course for falls avoidance in ME could be the sort of area that the NIHR might...
Although I wouldn't currently trust them to be competent to do this at the present time!
It might be useful if all the specialist ME/CFS clinics offered patients ME specific fall avoidance courses, both as an outpatient and via a...
I think the problem will come in the funding model, with funding being spread so thinly that these general fatigue and pain clinics will never be...
I think a big issue is that our specific symptoms are not even asked about, much less recorded by clinicians. Instead the 'chronic fatigue'...
Absolutely, alarms bells rang for me too when I was re-reading these documents last night. I think we need to be very aware that these 'fatigue...
Or are they just pleased that their lives are made easier in the same way that GPs are happy to consign difficult patients to the 'MUS' IAPT pathway?
It seems Neurologists have solved everything there is to know about medical neurology that they can be so certain that any symptom pattern or sign...
In other words, patients have 'neurological signs' that don't fit other established neurological disorders (e.g. Parkinsons, stroke), well,...
That FND is made on the basis of positive signs, rather than via exclusionary testing, is stated by the Plymouth service: Of course, it doesn't...
That typo did make me laugh though. The whole webpage reads likes it's been written by a school child.
Is David Strain, as the new medical advisor to Action for ME, aware of the dangers of FND as well as the lack of any scientific evidence for it?
See the below link for which UK hospitals are diagnosing FND in their neurology departments: https://www.fndaction.org.uk/specialist-care/ Very,...
'Developing groups for the ME/CFS service', this can only be for the most mildly affected patients. I have no confidence that anything is going to...
I'm lucky that my daughter can take as many lateral flow tests as needed before visiting me or taking me to appointments (I've had to do two...
My parents always invested in decent beds for us. Growing up near the factory, I've had Relyon beds since age 16, with full pocketed springs. My...
Exactly. I'm pretty sure I could have found multiple of my ex-husbands friends and colleagues who would have said this about him. Didn't mean he...
Separate names with a comma.
