An example of NICE's response to the below stakeholder concern to GET in the 2007 draft. Example stakeholder comment (BRAME Blue Ribbon for the...
But the 2007 NICE CFS/ME guideline specifies: So surely this means that the guidelines even back in 2007 recognised that there were potential...
Given that most GPs have no idea how to accurately diagnose ME/CFS, I think this has happened increasingly over the years. That's why PEM/PESE...
Thank you again for you hard work over the years on this.
I was thinking in terms of their doctors purposely recording them with a different code than G93.3 because of their 'chronic fatigue' symptoms,...
I wonder how many patients who have been told they have 'Chronic Fatigue Syndrome' by a doctor (in the UK) have actually been given the F48.0 code...
I am sure this is going to be brought to the NICE roundtable meeting by certain Royal Colleges as 'evidence' to support their case.
Let's not forget what happens when people do a Google search. I put in 'NHS chronic fatigue', the very first link in Google brings up this:...
This is an interesting find. Because this is why they are arguing against PEM/PESE being the core symptom in the new NICE guidelines. They want...
I think that is what they call 'harassment'.:rofl:
I actually felt that was how the NIHR HTA panel I was on worked. However, that was very different than the other panels that had a high percentage...
Well, they stared down the barrel of the gun of repeated Freedom of Information requests, PWME attending their talks and having their work...
I found this quote by Geschwind, which certainly implies he considers autistic people 'sub-human':
What window should he use to look at this debate? Well, since NICE guidelines exist to improve the care of patients and patients are the ones...
To me, this consensus statement shows an attitude of care and compassion towards PWME. This brings into stark contrast what is currently happening...
'There are just experts and data'? Hmm, what about robust scientific practices?
Despite causing considerable harm to the autistic community, Simon Baron Cohen received his knighthood this year. Sound like a familiar pattern to...
I've been out of the autism advocacy community for quite a few years so don't know much about this guy. Do you have a few links to any critical...
Didn't they also complain about the 2007 NICE guideline definition as being too strict? I seem to remember reading that although I'm too ill at...
Precisely. They seem incapable of actual dialogue with autistic people, which would be the simple and more immediate way to find out their medical...
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