I have a lot of concerns about this particular study, but I don't have the capacity to go into them here on the ME forum. The study is being...
Yep. It's easy to see how they cherry picked and twisted the original responses from their scoping engagement exercise with claimants which they...
I emailed them (the DWP) for an accessible Word version of the online survey but am yet to hear back. I couldn't find an accessible version on...
It's very good considering so many PWME don't normally engage with community advocacy for various reasons, not least they are struggling to just...
Works well on Mum's net. We do need to watch and control the fallout from this guy.
Ahh, I spot the teacher's tone of voice coming through in that response...
But he is the so called specialist doctor, so should be correcting them with factual correct information. Which he doesn't. Also moderate to...
I've noticed he gets invited to speak on Times Radio quite a lot (not in relation to ME). I can't remember the subjects I heard him speak on but...
NICE hasn't defined ME as a condition where 'exercise invariably causes harm'. Most of us haven't seen the final version but the draft spent a lot...
This seems to be the latest report on the Bath approach to paediatric 'CFS/ME' (2017):...
Yes. The change to Clinical Commissioning Groups across the country increased the already existing 'postcode lottery' in the availability of...
This paper is available on Sci-hub. I'm not giving a link as these keep changing.
That's just inspired me to start a new game!
I think this is a big problem with the NICE guidelines. I've never looked at most of them but, for example, with the autism ones this information...
To be pronounced Bam! - 'eck! (heck)... Cross posted with @Hutan!
I found that over the years more of my GPs keep insisting on referring to ME as 'CFS' (for example in referral letters), which seems to be what...
Wish I had kept the pair of gardening boots I found out in my utility (side building on my house I use more as a 'shed') in the spring - they had...
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