While the “multidisciplinary and multi-organ system” approach is good for doctors treating patient symptoms and comorbidities, to me from a...
I’ve been out of the research loop for a long while but off top of my head I don’t recognize most of the invitees, only a few established ME/CFS...
Who knows this could just be an ME fluctuation, but here’s my anecdote Compared to LDA it’s harder for me to definitively attribute it to Zep...
Some events basically strongly suggest it cannot be a placebo effect. First, if your ME never fluctuated to such an improvement ever before on its...
It’s goes without saying that I’m all for Dr Tam giving patients the option to try Abilify, they will be helping a number of people because I’m...
Exactly, just like for these “miracle” diabetes and obesity GLP-1/GIP drugs, even for these 10-15% of patients in phase 3 clinical trials were...
In my case I can wholeheartedly tell you this is not a fluctuation, my illness doesn’t fluctuate to this extent where mostly goes away all on its...
To clarify your definition of “good” evidence is human clinical trial evidence. There is quite a lot of anecdotal evidence that Abilify can help...
@Jonathan Edwards How about ignoring for now the semantics or specific immunobabble language of Th1/Th2 balance and, I'll try my best here I'm...
@Jonathan Edwards do you have any thoughts or useful insight into ITK as a target and possible ITK inhibition in ME/CFS? Like everything else to...
Best of luck to you too. You should know in a couple weeks after starting whether it works or not
Hi everyone I have a significant update - with the new bottle of Abilify I still need to take 2 mg to have a good effect! So this comes as a bit...
ITK inhibitors in inflammation and immune-mediated disorders, Sahu et al, 2009
What do people think about interleukin-2 inducible T-cell kinase (ITK) inhibition as a possible target for ME/CFS for an empirical drug response...
https://www.nature.com/articles/s41588-024-01682-1 Translating genome-wide association study (GWAS) loci into causal variants and genes requires...
And the NIH ugh always getting things wrong their recent study saying no evidence of brain injury?!?!? Not listening to patients
This time around I am not going to take it for months, because while I have no idea if it’s covering up symptoms or actually providing symptom...
I started a third cycle of low dose Abilify March 10th. It’s worked again for me. For those not familiar I did the first trial in 2021 then took a...
May I ask, why isn’t it also possible like they said in a few of the articles on this that monoclonal antibodies like rituximab just aren’t...
I’m telling you my experience with keto and how it temporarily yet dramatically improved my ME symptoms wasn’t “in my head” or a fluke. It didn’t...
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