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  1. leokitten
    Post

    Brain FADE syndrome: the final common pathway of chronic inflammation in neurological disease, 2024, Khalid A. Hanafy

    I don’t know how far the evidence base has gotten on this, but CRP could be a potential biomarker of depression severity and worse treatment...
    Post by: leokitten, Jan 20, 2024 in forum: Long Covid research
  2. leokitten
    Post

    Trial Report Successful treatment of myalgic encephalomyelitis/chronic fatigue syndrome using hydrogen gas: four case reports, 2023, Hirano

    What we all really need is some laughing gas
    Post by: leokitten, Nov 6, 2023 in forum: ME/CFS research
  3. leokitten
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Did this documentary ever get made?
    Post by: leokitten, Oct 25, 2023 in forum: General ME/CFS news
  4. leokitten
    Post

    If you had to guess ME/CFS cause, what'd you say?

    Immune system dysregulatiom triggered by viral infection. Caused chronic immune overactivation for many months that set in motion a cascade of...
    Post by: leokitten, Oct 19, 2023 in forum: Possible causes and predisposing factor discussion
  5. leokitten
    Post

    Serotonin reduction in post-acute sequelae of viral infection, 2023, Wong, Cherry et al

    Just a thought, why then did that DBRCT of ivermectin or metformin or fluvoxamine in LC show only metformin had a beneficial effect? Fluvoxamine...
    Post by: leokitten, Oct 17, 2023 in forum: Long Covid research
  6. leokitten
    Post

    Efficacy of daratumumab in refractory primary Sjögren disease Nocturne 2023

    I don’t know how common it is in pwME, but I’ve had multiple positive 1:160 or 1:320 ANA tests with homogeneous pattern
    Post by: leokitten, Sep 26, 2023 in forum: 'Conditions related to ME/CFS' news and research
  7. leokitten
    Post

    Long Covid in the media and social media 2023

    SF Chronicle: UCSF is trying a new tactic to eradicate long COVID symptoms. Here’s how it works
    Post by: leokitten, Sep 23, 2023 in forum: Long Covid news
  8. leokitten
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Sorry if I could ask here since I missed so many posts, are there any ideas as to why in some of our cells there is ER stress and the UPR can’t...
    Post by: leokitten, Sep 19, 2023 in forum: ME/CFS research
  9. leokitten
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    @B_V thank you for all the hard work on this, and for providing the patient community a much needed dose of new discovery and reinvigorated hope....
    Post by: leokitten, Sep 19, 2023 in forum: ME/CFS research
  10. leokitten
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    I saw in an NIH media piece on the study that they were also looking at the ER stress inhibitor drug salubrinal and tested it on ME cells in the...
    Post by: leokitten, Sep 19, 2023 in forum: ME/CFS research
  11. leokitten
    Post

    Stanford MECFS working group meeting 2023

    And sorry if this idea has already been hashed out and isn’t relevant, but how about clinically testing IL-1 inhibition in ME/CFS patients as...
    Post by: leokitten, Sep 17, 2023 in forum: ME/CFS research news
  12. leokitten
    Post

    Stanford MECFS working group meeting 2023

    What are thoughts on testing type I interferon inhibitor therapy in ME like is done in SLE? Since they’ve found similar levels of increased IFNa...
    Post by: leokitten, Sep 17, 2023 in forum: ME/CFS research news
  13. leokitten
    Post

    Stanford MECFS working group meeting 2023

    CAD is also known as ACOD1 and is encoded by immune responsive gene 1 (IRG1)
    Post by: leokitten, Sep 16, 2023 in forum: ME/CFS research news
  14. leokitten
    Post

    Cerebrospinal fluid (CSF) proteomics

    Parkinson’s, MS
    Post by: leokitten, Aug 27, 2023 in forum: Neurological/cognitive/vision
  15. leokitten
    Post

    Transcutaneous Vagus Nerve Stimulation in the Treatment of Long Covid-Chronic Fatigue Syndrome 2022 Natelson et al

    I think because Natelson, for better or worse, doesn’t necessarily support using more restrictive criteria. I spoke to him about the various Dx...
    Post by: leokitten, Jul 5, 2023 in forum: ME/CFS research
  16. leokitten
    Post

    Use of antidepressants for/with ME/CFS?

    It’s probably been said here before, but major depressive disorder (MDD) is extremely common in multiple sclerosis patients. I think it’s one of...
    Post by: leokitten, Jun 15, 2023 in forum: Drug and supplement treatments
  17. leokitten
    Post

    Use of antidepressants for/with ME/CFS?

    I think many well intentioned doctors do understand that depression isn’t ME/CFS, even though some symptoms on the surface can overlap. And many...
    Post by: leokitten, Jun 12, 2023 in forum: Drug and supplement treatments
  18. leokitten
    Post

    Trial Report Outpatient treatment of Covid-19 and the development of Long Covid..., 2023, Bramante et al

    I guess they should’ve used an “active” placebo that also caused a similar gastro side effect as what metformin causes. Not sure how feasible that...
    Post by: leokitten, Jun 10, 2023 in forum: Long Covid research
  19. leokitten
    Post

    Spouse wants to invite a friend to visit when I’m very sick

    @Milo Even when I was less severe than I am now major travel always comes with this fear that I won’t be able to make it back! That I will...
    Post by: leokitten, Apr 3, 2023 in forum: Relationships and coping
  20. leokitten
    Post

    Spouse wants to invite a friend to visit when I’m very sick

    It will be end April or early May
    Post by: leokitten, Mar 31, 2023 in forum: Relationships and coping
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