I see, so you mean a combo of the other Yeses. You have difficulty even with no exertion and also it's even worse after exertion?
Trish I don't quite understand the 2nd option?
Sorry didn't imply that you should do the experiment, but if you remember how it was like with ME and sleep before you ever did meds or if you...
What does everyone think about this new poll. I want to keep things simple yet look it from a slightly different perspective. Also, one thing...
@Milo this is exactly the same as me as described in my OP. Exertion leads to PEM and part of PEM is a cluster of nighttime symptoms including...
Wouldn't you eventually fall asleep with no meds? (like I do?) I doubt ME sleep issues would keep your body awake indefinitely? Also, how much...
To give you my data point, I had a significant change in my ability to sleep at about a year or more BEFORE getting sudden onset ME (though not...
It’s not just age of onset, I found there is also a limitation in my poll based on some of the responses in this thread, where people didn’t know...
ME has generally made me feel like I’ve been poisoned, just an overall disgusting feeling and my body telling me it is very sick. I used to get...
Another possible explanation for the symptoms I described could be straightforward brain overstimulation from the exertion. Our ME poorer...
I guess though steroids have some utility in ME, @Hip compiled a nice list of PEM shielders and relievers back on PR...
For me these symptoms are some of the earliest signs of PEM, but just like you if I keep exerting the PEM ramps up and insomnia becomes so extreme...
Could the hypothesis that ME-caused low cortisol, particularly dipping too low in the evening, be an explanation for the symptoms I describe? It...
To me this feels like a yes too. If one has to put effort to try and keep a normal circadian rhythm or if slightest things causes your ME to push...
My entire life until a year or so before ME my circadian rhythm was normal and I always slept well. For about a year or so before getting sudden...
One of the most debilitating aspects of my ME is that the disease causes me major sleep inversion. On most evenings, after significant enough...
Might increased serum NfL also be a potential biomarker for ME/CFS since it is for Alzheimer’s and other neurological disorders?...
I will be there in person
This is an oversimplification and misrepresentation of what I’ve posted on this thread.
I am effectively in the same shoes so I think I know what the battle is like. My ME has steadily worsened to the point where since last summer...
Separate names with a comma.
