3 days. The ME is creeping back not any sudden return. I wonder if it’s, like I mentioned, the immune system signaling to ramp down as the cold...
@Jenny I just had the same thing, first time since I got ME. For me a bit different I went ME-symptom free for 3 days as my cold started...
I’ve just recovered from the first proper cold I’ve ever gotten since I fell ill with ME/CFS six years ago. The first 3-4 years I never once felt...
Blurring and problems focusing. Gets worse along with my other symptoms when overexerting and PEM builds. I have to stare much harder at computer...
SSRIs have very strong stimulatory effects and make it hard to sleep. I wouldn’t ever use them in ME/CFS they very likely will not work and...
I wouldn’t worry. There isn’t a paper yet, this is just an oral or poster abstract that they’d submitted for the annual ASH conference happening...
I agree ESR isnt a good biomarker for ME Like others here while I had very low ESR early in the disease like 0-2 (and it was measure multiple...
It’s the only one I have in the medicine cabinet :laugh: I thought maybe next time I get the pre-crash symptoms incl. my brain on fire and...
What are your thoughts on naproxen compared to ibuprofen?
What do you do to target inflammation? Also, where do you buy MAF? From gcmaf.se?
I’m less inclined to believe neuroflammation reduction is one of the principal reasons a ketogenic diet significantly helps a subgroup of PWME...
@Hutan the answer to the question, “do I have PEM and then get the urge to eat carbs or do I eat carbs and get PEM” is both. They also aren’t...
@Hutan may i ask, and I definitely don’t mean to interrogate in any way, but why did you state that you only think the keto diet helps? Given...
Sorry made some updates to post while you commented
For me the diet has continued to cause a significant reduction in many of my ME symptoms and, like others have stated in their follow-ups,...
When you deviate how do symptoms change? Did you go through any long enough period where you were really strict, measured glucose and ketones,...
Just checking in with those here who started a ketogenic diet? It’s been a few months or so, how are things holding up? Can you say now that it...
It gives me diarrhea
ME caused me constipation during the chronic phase. I never had constipation my entire life. During the acute phase I had IBS and diarrhea....
Would our body and cells keep us in ketosis while it’s filling glycogen stores when our blood has plenty of glucose? From my understanding you...
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