I’m sure many people think we are agoraphobic or something but couldn’t be further from the truth
Fortunately we have two bathrooms, and the extra bedrooms and bathroom are on the opposite side of the house down a hallway compared to the living...
I got to the point where I was in a semi-permanent crash in what I think is close to severe state for a couple months and was starting to become...
I’m actually not sure what she knows, she’s my spouse friend but we visited each other multiple times over the years and she’s gotten to know me...
I used to be able to do this and was willing to for most of the time I’ve had ME. But now it’s way worse, which I hope I’ve described in enough...
@Hutan for sure I could try to do a couple specific short events to reduce risk of PEM. That is good advice Regarding being in the bedroom. I...
@JemPD sorry I was having trouble quoting, but following your previous post I wanted to ask everyone that no matter how much you explain or show...
Yes it is hard for him. He says he sees how terrible and painful things are, during many crashes and symptom upticks I’ve given him real-time...
That’s definitely already a necessity and understood by my spouse without even needing any discussion. But even just a few hours during the...
My spouse’s friend doesn’t have to stay at our house. The reason is since we last saw her years ago we moved to a new house and metro area and I...
My spouse wants to have a friend visit at our house for a couple days. We live in a ranch home where the living space is on one floor and the size...
He was sent to Cuba to investigate Havana Syndrome cases. So to me there was a motive to incapacitate him right away. I don’t think they cared if...
Another useful reference...
I think I could be wrong… because medulla, pons, midbrain all control areas like breathing, sleep/wake cycle, temp regulation, vision, hearing,...
The original Havana brain imaging study found issues primarily in the cerebellum...
The main conclusion: All regions part of brain stem. How does this correlate to the findings in Havana syndrome that have primarily cerebellum...
I have to review this in more detail but wondering how these more recent DTI MRI brain region findings and comparison to previous work connect to...
[MEDIA] [MEDIA]
Some more recent Havana syndrome testimonials and interviews [MEDIA] [MEDIA]
Maybe the single connecting pathology between Havana and ME/CFS is balance and vestibular damage to the inner ear and/or cerebellum white matter....
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