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  1. leokitten
    Post

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving

    In the U.S. it’s been this kind of experience for much of society compared to what I’ve seen and experienced when I was living abroad. So for me...
    Post by: leokitten, Mar 2, 2022 in forum: Relationships and coping
  2. leokitten
    Post

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving

    Anti-capitalism is flooding TikTok as young people question a life that prioritizes productivity over well-being
    Post by: leokitten, Mar 1, 2022 in forum: Relationships and coping
  3. leokitten
    Thread

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving

    Do Nothing: How To Break Away From Overworking, Overdoing, and Underliving by Celeste Headlee https://celesteheadlee.com/do-nothing-book/
    Thread by: leokitten, Mar 1, 2022, 10 replies, in forum: Relationships and coping
  4. leokitten
    Post

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    I think because LC, PVFS, and ME have such nearly identical symptoms in so many people that this LC research will truly help us, even without...
    Post by: leokitten, Jan 23, 2022 in forum: General Advocacy Discussions
  5. leokitten
    Thread

    Politico: He Was Given 6 Months to Live. Then He Changed D.C. (Brian Wallach ALS)

    He Was Given 6 Months to Live. Then He Changed D.C. Brian Wallach was diagnosed with ALS the day his daughter came home from the hospital. In the...
    Thread by: leokitten, Jan 18, 2022, 14 replies, in forum: General Advocacy Discussions
  6. leokitten
    Post

    Aripiprazole - Abilify

    My sleep got close to normal with Abilify the first couple months. But like it’s other astounding effects it slowly started losing efficacy over...
    Post by: leokitten, Jan 2, 2022 in forum: Drug and supplement treatments
  7. leokitten
    Post

    Aripiprazole - Abilify

    I will definitely try Abilify again in April with the hope it will work again in the astounding way it did for a few months. That would be...
    Post by: leokitten, Dec 22, 2021 in forum: Drug and supplement treatments
  8. leokitten
    Post

    Aripiprazole - Abilify

    For me the decline in Abilify ME symptom improvements was a slowly building thing over months. I think my experience was different than what some...
    Post by: leokitten, Dec 17, 2021 in forum: Drug and supplement treatments
  9. leokitten
    Post

    Aripiprazole - Abilify

    I stopped Abilify in October, even though it was still working though not nearly as well as the first few months on it, with the hope of cycling...
    Post by: leokitten, Dec 16, 2021 in forum: Drug and supplement treatments
  10. leokitten
    Post

    Aripiprazole - Abilify

    So far since Sept 4 when I had the last report and blip I’ve really bounced back to how I was on Abilify before. Lowered Abilify dosage to 0.25 mg...
    Post by: leokitten, Sep 22, 2021 in forum: Drug and supplement treatments
  11. leokitten
    Thread

    Integrated analysis of plasma and single immune cells uncovers metabolic changes in individuals with COVID-19, 2021, Lee et al

    Pure speculation but maybe this line of research or the methods used in the paper to understand immune cell metabolic reprogramming via...
    Thread by: leokitten, Sep 7, 2021, 0 replies, in forum: Epidemics (including Covid-19, not Long Covid)
  12. leokitten
    Post

    Aripiprazole - Abilify

    On the brilaroxazine front, good news from Reviva Pharmaceuticals, they raised $34.5 million from investors and will start phase III trial of...
    Post by: leokitten, Sep 4, 2021 in forum: Drug and supplement treatments
  13. leokitten
    Post

    Aripiprazole - Abilify

    I want to report that the last two nights and following two days my sleep again went back to pre-ME great and during the day I’ve suddenly felt as...
    Post by: leokitten, Sep 3, 2021 in forum: Drug and supplement treatments
  14. leokitten
    Post

    Aripiprazole - Abilify

    Will do, but funnily I’m actually in the category of ME forum users that if I’m on the forums less means I generally have more energy and feel...
    Post by: leokitten, Sep 2, 2021 in forum: Drug and supplement treatments
  15. leokitten
    Post

    Guardian Article on NICE pause

    Yes, this is what so many people who understand little about ME seem to miss when they give their two cents. That unlike other chronic conditions...
    Post by: leokitten, Aug 31, 2021 in forum: 2020 UK NICE ME/CFS Guideline
  16. leokitten
    Post

    Aripiprazole - Abilify

    I would say the main efficacy change, that at least in my illness strongly negatively affects the other ME symptoms, is related to sleep. After...
    Post by: leokitten, Aug 30, 2021 in forum: Drug and supplement treatments
  17. leokitten
    Post

    Aripiprazole - Abilify

    I’m almost 7 months on low dose Abilify and now I would say I’m starting to feel some significant tolerance or reduction in efficacy. It’s still...
    Post by: leokitten, Aug 30, 2021 in forum: Drug and supplement treatments
  18. leokitten
    Post

    Hypothalamic-Pituitary autoimmunity and related impairment of hormone secretions in chronic fatigue syndrome, 2021, De Bellis, Montoya et al

    Makes a lot of sense, and this intense carb hunger as a crash nears is worse in the evening and it’s accompanied by that ME super wired feeling,...
    Post by: leokitten, Aug 6, 2021 in forum: ME/CFS research
  19. leokitten
    Post

    Hypothalamic-Pituitary autoimmunity and related impairment of hormone secretions in chronic fatigue syndrome, 2021, De Bellis, Montoya et al

    Just wondering, but during these times have you accurately measured your blood glucose to confirm what you were experiencing was actually...
    Post by: leokitten, Aug 3, 2021 in forum: ME/CFS research
  20. leokitten
    Post

    Hypothalamic-Pituitary autoimmunity and related impairment of hormone secretions in chronic fatigue syndrome, 2021, De Bellis, Montoya et al

    I know this is speculative, but Abilify has definite known effects on endocrine function due to its binding on to dopamine and serotonin receptors...
    Post by: leokitten, Aug 3, 2021 in forum: ME/CFS research
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