Would be interesting to try plaquenil, thanks for mentioning it.
I think I wrote before here, but I used to have way more typical ME chronic immune activation/flu-like symptoms and also temperature regulation...
I haven’t tried it. Did you and did you respond to it?
Still same benefits since leveling off, take a bit more like 0.6-0.65 mg/day since a long while. 4 1/2 months on treatment
I think since then not only discovery of the role of tau protein plus I believe very importantly the role of blood brain barrier damage/breakdown...
Consequence 3: Doctors in the USA getting pressure from families to prescribe it off-label for loved ones with more advanced Alzheimer’s (for...
Also the fact that once you become overweight or obese for long enough your body considers it the new set point and fights you to stay there, and...
Big Pharma will always try for the easy fix because there’s so much money to be made A potential 'game changer' drug for weight loss and obesity...
The results of this paper didn’t show any real differences between CFS and controls, so either the kynurenine hypothesis is wrong or it’s only a...
Yep... exactly what I thought after reading it thank you!
Very true, but I just don’t think we are going to overhaul the clinical trial and regulatory approval system on top of trying to find a treatment...
Or statins for preventing major cardiovascular events. It could be that ok the drugs aren’t bad it’s that people taking them think ok now I don’t...
A meta-analysis review worth reading, giving pause to how truly (in)effective many common FDA approved are compared to placebo. How effective are...
Isn’t it true for most (if not close to all) FDA approved drugs, that during their successful phase III trials that were key to their regulatory...
If you went up in dosage I would expect it to cause sleep difficulties again until it normalizes?
Going back to Abilify and potential pathphysiological mechantistic clues… Here’s a question, let suppose that the theory that the core pathology...
I've been trying to tell Janet Dafoe and Ron via PR about brilaroxazine. To me so far in phase 1 and 2 clinical trials and other published...
Im not on the FBK group but if it’s anything like the Reddit CFS group of which I’ve read I believe all the posts regarding Abilify, it’s really...
In fact, at the very low dosages pwME are taking there’s significant experimental evidence that Abilify not only stabilizes dopamine but boosts...
Did those family members take the ultra low dosage Abilify and get TD from that? Did they have ME and were taking low dose Abilify to treat it? Or...
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