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  1. Marky
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    "Ten of the 12 patients (83.3%) positive for HLA alleles DQB1*03:03 and/or C*07:04 had a response, compared to 12 out of 28 patients (42.9%)...
    Post by: Marky, Apr 30, 2020 in forum: ME/CFS research
  2. Marky
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    "At baseline, only two of the responders had part-time work participation. During follow-up, at least nine out of 22 responders returned to either...
    Post by: Marky, Apr 30, 2020 in forum: ME/CFS research
  3. Marky
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    "The median time to first response was 22 weeks (range 2–42 weeks)." Its interesting that the effect is delayed also with cyclo, did u usually...
    Post by: Marky, Apr 30, 2020 in forum: ME/CFS research
  4. Marky
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    What long term concerns did u find occur other than bladder cancer in ur practice?
    Post by: Marky, Apr 30, 2020 in forum: ME/CFS research
  5. Marky
    Post

    Intravenous Cyclophosphamide in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. An Open-Label Phase II Study - 2020 - Rekeland, Mella, Fluge et al

    Cant wait to read this! :thumbup::party:
    Post by: Marky, Apr 30, 2020 in forum: ME/CFS research
  6. Marky
    Post

    Lightning Process study in Norway - Given Ethics Approval February 2022

    This is going to be a train wreck of a study Its impossible to do research on LP due to the very fact that the method itself demands of the...
    Post by: Marky, Apr 28, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Marky
    Post

    Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in ME/CFS - 2020 - Schreiner

    Nothing I ever experienced pre illness was really similar to what ME feels like. The combination of severe fatigue, brain fog, fasciculations,...
    Post by: Marky, Apr 27, 2020 in forum: ME/CFS research
  8. Marky
    Post

    ME-conference in Stavanger, Norway 22-23 September 2021 (new date)

    Damn it :thumbsdown:
    Post by: Marky, Apr 27, 2020 in forum: ME/CFS research news
  9. Marky
    Post

    Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in ME/CFS - 2020 - Schreiner

    I think u have to know what to filter, if ur referring to the plasmapheresis-study by Scheibenbogen et.al
    Post by: Marky, Apr 24, 2020 in forum: ME/CFS research
  10. Marky
    Post

    Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, and the Coordination of Antiviral and Metabolic Phenotypes in ME/CFS - 2020 - Schreiner

    Yikes I was withholding any excitement for this study until Jonathan reviewed it, seems like it was an good idea.. If we look away from...
    Post by: Marky, Apr 24, 2020 in forum: ME/CFS research
  11. Marky
    Post

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Well, Be careful @dave30th, with giving them sarcastic research ideas. Apparently they will get approved and funded by the government..
    Post by: Marky, Apr 15, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Marky
    Post

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    Only two follow-up visits: "care as usual’ implies that the relevant individuals would not receive any healthcare for their CF condition in the...
    Post by: Marky, Apr 15, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. Marky
    Post

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    They have all been told multiple times that the study was only ETHICALLY approved, not officially excused for not being a work of fiction. But...
    Post by: Marky, Apr 15, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. Marky
    Post

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    The government actually funded this madness. Let that sink in. Okay lets have a look at this magical musical treatment They say, "Evidence...
    Post by: Marky, Apr 15, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Marky
    Post

    ME severity scales - discussion

    Thats a great explanation @Mithriel, and has also been my experience.
    Post by: Marky, Apr 14, 2020 in forum: Diagnostic Criteria and Naming Discussions
  16. Marky
    Post

    Laura Hillenbrand 2020 —Her MECFS has improved and she has Covid-19

    Sure, but there is always someone who has it worse. Does not make it any less of a feat to endure the illness for so long
    Post by: Marky, Apr 12, 2020 in forum: General ME/CFS news
  17. Marky
    Post

    Laura Hillenbrand 2020 —Her MECFS has improved and she has Covid-19

    25 years.. Incredible feat of character:trophy@
    Post by: Marky, Apr 11, 2020 in forum: General ME/CFS news
  18. Marky
    Post

    The Hidden life of a cell - BBC documentary

    Just finished watching, really enjoyed it. Its mindblowing how complex the machinery is.. and viruses are really fascinating. Wish there was more...
    Post by: Marky, Apr 10, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  19. Marky
    Post

    The Hidden life of a cell - BBC documentary

    [MEDIA]
    Post by: Marky, Apr 9, 2020 in forum: Epidemics (including Covid-19, not Long Covid)
  20. Marky
    Post

    Human Leukocyte Antigen alleles associated with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS): Fluge, Mella et al 2020

    I agree Personally for me it manifested with exercise intolerance with heavy cardio, until one day after football where I just collapsed in the...
    Post by: Marky, Mar 29, 2020 in forum: ME/CFS research
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