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  1. Marky
    Post

    Induced coma

    Yeah, in the intensive care unit mom was in there was always one nurse assigned to her doing these things. You cant just leave people in an...
    Post by: Marky, Aug 1, 2019 in forum: Other treatments
  2. Marky
    Post

    Induced coma

    My mother was in a induced coma (shes fine now btw), and after seeing all the human resources that took at the hospital, I can`t imagine this...
    Post by: Marky, Jul 31, 2019 in forum: Other treatments
  3. Marky
    Thread

    Spinal MRI results

    Hey! Wondered if anyone knew what these results mean, and if it can or can not have any relevance to ME. Only included what was presumably...
    Thread by: Marky, Jul 29, 2019, 4 replies, in forum: General and other signs and symptoms
  4. Marky
    Post

    Sci-hub blocked in Sweden

    So much this! I don't like to plant a straw-man, but a lot of the times when im arguing with doctors supporting PACE or other bad psychosomatic...
    Post by: Marky, Jul 6, 2019 in forum: General Advocacy Discussions
  5. Marky
    Post

    Sci-hub blocked in Sweden

    It has become clear to me that scientific papers should not be behind a paywall, after all the misused conclusions i have seen e.g with ME. The...
    Post by: Marky, Jul 6, 2019 in forum: General Advocacy Discussions
  6. Marky
    Post

    Red-brown speckles on palm of hands and fingers

    Ah ok! Yeah, but I`m not sure where to go with it.. Dermatologist didnt know what it was. I guess I try a hematologist
    Post by: Marky, Jul 4, 2019 in forum: General and other signs and symptoms
  7. Marky
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Thank you for a wonderful clear and concise overview Michiel! This was really good. I might send this to some journalists if its ok, or...
    Post by: Marky, Jul 3, 2019 in forum: General ME/CFS news
  8. Marky
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Thats right, although sometimes there is so much information of personal/confidential character that the whole document can be withheld. This has...
    Post by: Marky, Jul 3, 2019 in forum: General ME/CFS news
  9. Marky
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Just read the e-mails and i am thoroughly flabbergasted. As someone who has multiple bad crashes due to gradual exercise, it really infuriates me...
    Post by: Marky, Jul 3, 2019 in forum: General ME/CFS news
  10. Marky
    Post

    Red-brown speckles on palm of hands and fingers

    Oh.There should be an option to scroll if you hover over the picture with ur mouse? Doesnt matter too much i guess, the other picture was just of...
    Post by: Marky, Jul 3, 2019 in forum: General and other signs and symptoms
  11. Marky
    Post

    Red-brown speckles on palm of hands and fingers

    You dont get three pics? Hmm weird it comes up here
    Post by: Marky, Jul 3, 2019 in forum: General and other signs and symptoms
  12. Marky
    Post

    Are there symptoms you had in the early stages of ME that you no longer get?

    For 6 months i occasionally got a sudden pressure-feeling in my head, that has not happened since. I also woke up a lot after falling asleep and...
    Post by: Marky, Jul 3, 2019 in forum: General and other signs and symptoms
  13. Marky
    Post

    Red-brown speckles on palm of hands and fingers

    Wow i cant believe i finally found someone with similar issues, but it makes sense its from someone with the same disease! I showed the following...
    Post by: Marky, Jul 3, 2019 in forum: General and other signs and symptoms
  14. Marky
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Did ur doctor actually say meme haha what a champ
    Post by: Marky, Jun 25, 2019 in forum: ME/CFS research news
  15. Marky
    Post

    Suggested Pathology of Systemic Exertion Intolerance Disease [...] (2019) Bohne

    I can attest to this, i tested at the hospital with a level between 2.5-3 mmo/l and did not feel any more different than normal. I think it`s a...
    Post by: Marky, Jun 15, 2019 in forum: ME/CFS research
  16. Marky
    Post

    Suggested Pathology of Systemic Exertion Intolerance Disease [...] (2019) Bohne

    I know people I trust who has had a strong response, but as we know from experience we need the research. At the moment they weren't allowed by...
    Post by: Marky, Jun 15, 2019 in forum: ME/CFS research
  17. Marky
    Post

    Suggested Pathology of Systemic Exertion Intolerance Disease [...] (2019) Bohne

    Thanks for the links @wigglethemouse, I read through it but don`t have the education for assessing how energy metabolism works besides basics.....
    Post by: Marky, Jun 15, 2019 in forum: ME/CFS research
  18. Marky
    Thread

    Suggested Pathology of Systemic Exertion Intolerance Disease [...] (2019) Bohne

    Title:Suggested Pathology of Systemic Exertion Intolerance Disease: Impairment ofthe E3 Subunit or Crossover of Swinging Arms of the E2 Subunit of...
    Thread by: Marky, Jun 15, 2019, 26 replies, in forum: ME/CFS research
  19. Marky
    Post

    Panic attacks or crashes?

    Hi Milo! Ive had a holter monitor 4 years ago, which showed tachycardia when jogging for over 10 minutes. My heart is however mechanically...
    Post by: Marky, Jun 13, 2019 in forum: Post-Exertional malaise and fatigue
  20. Marky
    Post

    Abnormal blood lactate accumulation during repeated exercise testing in ME/CFS, 2019, Lien et al

    Ive been thinking positively for 5 years and i still crash from get, i dont think I have the same disease as these anonymous recovered patients
    Post by: Marky, Jun 8, 2019 in forum: ME/CFS research
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