Very good point. I actually think u might need training over a longer period to see that response in mild/moderate-patients, which then e.g could...
Happy to finally see it published. Seems to me to indicate that we lack the ability to recover from day 1 and increase our physical performance,...
Thank you all so much for your help. It has benefited me much more than my two trips to the ER
Yea I think ur spot on here Dechi! Come to think of it, when i had my first collapse after football training exactly 5 years ago when i first got...
Thanks for your thoughtful reply Jonathan! Interesting to hear u have experienced something similar. I don`t know how to explain what it is...
Its weird, cause in my case my PEM/crash can be delayed by a month after starting gradual exercise. It has happened everytime ive tried, and...
Same here! I`m quite astounded it has not happened, at the same time I guess it helps to concentrate all ur willpower to not black out haha
I dont think i have any heart problem, but when i had the first two episodes i could not know what was going on so that escalated the anxiety i...
Ohh wow, I didnt know cacao had so many beneficial ingredients! Maybe I should drink some more of it myself, usually only do at winter
Only high dose vitamin D, but I was on that for a month prior to this period so I dont know^^ Did u actually react on hot cacao chocolate? Saad...
Only like 1-3 cups a day usually..:emoji_coffee: Good that it worked for u! I get them when i have not had coffee also so i guess it isnt that
Thanks, I believe it is excluded.. I dont normally get a high pulse when standing, just somewhat elevated blood pressure. I actually thought i had...
That has been the case before, but when i was lifting and collapsed it was the most "violent" episode yet. After that ive been having these panic...
By the way, thanks for taking ur time to reply. I dont want to hassle my family/friends more with ME-related stuff, so its great to be able to...
Interesting We talked about it last week. She`s a fresh doctor substituting my GP for a year, and I must only assume she thinks im crazy:P She...
Thank you Andy :emoji_slight_smile: I really hope so..
So I`m having a bit of an issue the last week. After doing strength training the last month, I ended up collapsing at home with high heart rate...
I think this is very likely, and a well known phenomena already. When i did ritux privately, I remember feeling better around the second to...
I suspect too that objective parameters would not be indicative of "no fatigue" in the group with placebo. I dont think patients with long term...
Even the people with motor neuron disease get questioned by these guys :woot:
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