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  1. Marky
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I also thought the following passage on the theorethical grounding of CBT and GET was very solid "Patients recruited to studies are likely to be...
    Post by: Marky, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  2. Marky
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    The draft is very clear on GET and CBT not being curative treatments for ME, and that they never shud be pushed on the patient past their energy...
    Post by: Marky, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  3. Marky
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    The committee on why they wont support GET
    Post by: Marky, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  4. Marky
    Post

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    This is an historic draft. Its really really good for ME-patients. Buzzing.
    Post by: Marky, Nov 10, 2020 in forum: 2020 UK NICE ME/CFS Guideline
  5. Marky
    Post

    Whitney Dafoe Updates

    Interesting, I have actually heard a lot of them. Might be cultural differences
    Post by: Marky, Nov 6, 2020 in forum: General ME/CFS news
  6. Marky
    Post

    Whitney Dafoe Updates

    Well I studied at uni and worked, and the first years after disease onset was a nightmare cause many family and friends thought i was mentally...
    Post by: Marky, Nov 6, 2020 in forum: General ME/CFS news
  7. Marky
    Post

    Substrate utilisation of cultured skeletal muscle cells in patients with CFS, Tomas et al, 2020

    Ahh right, I remember you saying that at another time too now :thumbsup:
    Post by: Marky, Oct 26, 2020 in forum: ME/CFS research
  8. Marky
    Post

    Substrate utilisation of cultured skeletal muscle cells in patients with CFS, Tomas et al, 2020

    Whats wrong with the results? You dont think they can conclude as they did based on their findings? Asking cause I cant analyze them...
    Post by: Marky, Oct 26, 2020 in forum: ME/CFS research
  9. Marky
    Post

    Substrate utilisation of cultured skeletal muscle cells in patients with CFS, Tomas et al, 2020

    My try on summarizing below.. Please point out if ive said something wrong, I only have basic knowledge of this stuff from ancient biology uni...
    Post by: Marky, Oct 26, 2020 in forum: ME/CFS research
  10. Marky
    Post

    The Lonely, Isolating, and Alienating Implications of ME/CFS. Boulazreg & Rokach. 2020

    "Catastrophizing, defined as the general tendency to assumethatthe worst-case scenario will happen, presents challenges for the overly cautious...
    Post by: Marky, Oct 20, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  11. Marky
    Post

    What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

    My bad I thought that came later haha
    Post by: Marky, Oct 13, 2020 in forum: ME/CFS research
  12. Marky
    Post

    What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

    Insulin: "Before insulin was discovered in 1921, people with diabetes didn’t live for long; there wasn’t much doctors could do for them. The most...
    Post by: Marky, Oct 13, 2020 in forum: ME/CFS research
  13. Marky
    Post

    What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

    Then e.g. Jonathan Edwards trying Rituximab for RA. If I recall correctly he did not know much of any specific disease mechanism, other than RA...
    Post by: Marky, Oct 13, 2020 in forum: ME/CFS research
  14. Marky
    Post

    What’s in the pipeline? Ongoing, registered, or planned clinical trials for ME/CFS

    Penicillin: There was suspicion it had antibacterial properties, and Alexander Fleming put this to the test by injecting it into some of his...
    Post by: Marky, Oct 13, 2020 in forum: ME/CFS research
  15. Marky
    Post

    Aripiprazole - Abilify

    Thanks for your experience from Finland JES, interesting to read its the same. One thing I forgot to mention when it comes to insurance, is that...
    Post by: Marky, Oct 4, 2020 in forum: Drug and supplement treatments
  16. Marky
    Post

    Aripiprazole - Abilify

    Its a concern, yes. But so is living with this with no end in sight
    Post by: Marky, Oct 4, 2020 in forum: Drug and supplement treatments
  17. Marky
    Post

    Aripiprazole - Abilify

    It`s so frustrating being Norwegian without insurance, as its almost impossible to try anything at all here cause every GP or specialist that...
    Post by: Marky, Oct 4, 2020 in forum: Drug and supplement treatments
  18. Marky
    Post

    'Lab' testing - could dogs smell ME/CFS?

    I got a couple of good miracle candidates for these dogs lol
    Post by: Marky, Sep 26, 2020 in forum: Laboratory and genetic testing, medical imaging
  19. Marky
    Post

    Aripiprazole - Abilify

    Yea, but I saw someone say they got weight gain anyway, but then again, i see people with ME saying they have mysterious weight gain so i dont know
    Post by: Marky, Sep 23, 2020 in forum: Drug and supplement treatments
  20. Marky
    Post

    Aripiprazole - Abilify

    Maybe, but a lot of people say they gain weight regardless of calorie intake being lower than calorie expenditure, obv. you cant take what people...
    Post by: Marky, Sep 23, 2020 in forum: Drug and supplement treatments
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