Question from Julia (MEANA group): Will the biobank only store blood, or will it store other types of samples too?
I watched the Q&As, they were terrific. Heidi has had several discussions with the UKMEB team during the development of the application, and no...
Question from Fiona (MEANA group): Will samples from patients who've already participated in research done by Paul Fisher and/or colleagues such...
Question from Susan (MEANA group): Will patients be asked about their onset type, and will the databank allow for extensive descriptions in...
Question from Susanna (MEANA group): Do they have access to a doctor who will correctly diagnose patients for acceptance to the biobank as per...
Questions from Susan (MEANA group): Will patients who have comorbid conditions be allowed to still give blood and be part of the research pool?...
Another question from me: Does the funding include provisions for going to the homes of housebound or bedbound people to collect samples? (PS...
Question from Shelley-Lee (MEANA group): Will young people or adolescents be included in the sampling, or just adults?
I have some questions: I’m especially excited that this project brings together the UK ME/CFS Biobank and Solve’s patient registry and...
To explain: I posted this thread in the ME Advocacy Network Australia FB group, and several members had questions but aren’t members of S4ME (and...
Question from Jac (MEANA group): Do we need to provide our diagnostic details ie the doctor, and/or hospital, and a date or rough date of...
Questions from Sam (MEANA group): Who will have access the to patient registry list? What level of anonymity can we expect? If my samples are...
Questions from Mali (in the MEANA group): How do we participate in the blood bank? Do they want ME/CFS patients to donate blood specifically...
Just to clarify (because there has been some confusion elsewhere): signing up via that link isn’t signing up to the biobank or registry. It’s just...
We’re really excited about this announcement! A huge amount of work went into bringing these groups together. Not just Emerge Australia, SMCI and...
Terrific response, @Michiel Tack! You’re so quick!
We’ve made several complaints and entreaties to RACGP in the past, with no success. But I’m planning a response from Emerge to RACGP, and...
Yes, Australia committed to funding a health economics study of ME/CFS. Hopefully we shall have an announcement of the successful application...
Yes, that’s great! Thanks, @MeSci! :)
WOULD YOU LIKE PHONE AND ONLINE DOCTOR CONSULTATIONS TO BE AVAILABLE THROUGH MEDICARE IN AUSTRALIA? Your help is needed to make this happen. Tell...
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