Thanks, @Ravn. Yes, we have worked really hard! We definitely need lots of people providing feedback to give us extra support when we go to the...
For anyone who would like to contribute but is feeling overwhelmed at the thought. We are doing a Read-Along over on the #MEAction Network...
Emerge Australia Health and Welfare Survey is another patient survey to add to the weight of evidence....
Summary of Committee’s Recommendations for Consideration by NHMRC and the Australian Health Portfolio Strategic focus 1: Research quantity and...
Australia’s National Health and Medical Research Council (NHMRC) established an ME/CFS Advisory Committee in late 2017. The terms of reference for...
Terrific work, @Webdog!
As I said in my post, it is on my list to write a letter to be sent from Emerge. Emerge will be writing about this study, it’s just taken me a...
The following keynote speakers have been confirmed for the Symposium: - Dr. Chris Armstrong - Dr. Leighton Barnden - A.Prof. Jonas Bergquist -...
Some news from the recently formed ME/CFS Discovery Research Network (MDRN), a group of Australian researchers collaborating on ME/CFS, about...
Emerge Australia is hosting an international research symposium, 12-15 March 2019, in Melbourne, Australia. This symposium, “ME/CFS: The...
Bugger! How about this? It’s only a 2 min clip out of a 10 min segment, but is something. [MEDIA]
Emerge Australia CEO, Heidi Nicholl, and Sydney patient, Jade Barclay, appeared on the Today show on Channel 9 in Australia this morning. The...
Thanks everyone. This was a good a response as we could realistically hope to get. Alem’s mum is part of the #MEAction Network Australia group...
And, sadly, because it has been such a successful strategy to secure funding, they’re unlikely to change their approach.
Yes, I agree. That is a bugbear of mine too. It gives patients false hope, which I think is unethical.
Yes, this concerns me too. Patients believing hype about research, which doesn’t necessarily match the science itself; looking for a saviour. But...
Thanks so much for the transcript, @Sly Saint! So helpful.
New article accompanying the episode, from Jen Temm, mother of 15 year old Luke. “My son hasn’t left the house in a year”....
Yes, Andrew Lloyd would love nothing more than for the existing guidelines (which he co-authored) to remain (despite the strong criticism from...
That’s the sense I’m getting from people too. Mostly okay, with some GET rubbish, and too much emphasis on people having recovered. Could have...
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