The review of the NICE guidelines got some media attention here, in an online medical rag. It’s predictably bad. (Apologies if this has already...
Given there’s a typo on Daniel Forrest’s listing, it’s not possible to tell if it’s meant to read “affected by” or “previously affected by”. It’s...
Does anyone know what this means given that applications for the CRCs RFA aren’t open until next month? How did Hanson get this funding? What does...
I haven’t been around much lately, but just wanted to say that Emerge wrote to this group, highlighting the issues with the study. We haven’t...
Apologies if this has already been posted! I couldn’t find it. This is a recently published textbook on Long COVID. It is described as an...
So much about this is frustrating. We knew it was coming, but still frustrating. But what I’m finding infuriating is how much the PACE trial is...
Thanks!
Yes, we really do!
Hi everyone, I’m interested in any research or surveys which track the impact of a COVID infection on ME/CFS symptoms and/or functioning. I’ve...
LDN helped my cognitive functioning and sleep and reduced my pain and parasthesia. It’s been good for those symptoms but I’m still mostly...
For anyone interested, someone sent me an article from an old Emerge journal. Emerge’s journal is also called Emerge (yes, confusing! The journal...
The use of the butterfly definitely predates the Whittemore Peterson Institute.
I started out on this quest sure this was going to be something so obvious that I had just failed to notice over the years. Glad I’m not the only...
Interesting! I didn’t know that. Interesting that even in that discussion, it wasn’t being considered for an historical reason. I remember that...
No, it’s a reference to allodynia (that the skin is so sensitive to touch that something even very light, like a butterfly landing on your arm,...
Yep, the FM butterfly is a reference to allodynia, which is very specific and clearly relevant. Apart from the cocoon/butterfly metaphor, I can’t...
Yes, they do. It’s also used by Lupus (purple), Adrenal Insufficiency (blue) and other illnesses.
I’ve posted about this elsewhere and had some suggest that perhaps the butterfly was a connection to Florence Nightingale, though I’ve not been...
@Peter Trewhitt Thanks, yeah those are the ones I found too. It definitely has a history here in Australia, but I can’t find how it came about. I...
They’re adorable, but so close to the idea of slothfulness and laziness.
Separate names with a comma.
