Thank you to @Simon M for initiating this discussion, and for everyone involved in the poll and submission. It's really wonderful to see this...
An excellent critique of the CDQ. Thank you to everyone who participated!
That jumped out at me too. What would cause such a delay between submission and acceptance? It's interesting to reflect on how much things have...
Shared on #MEAction Network Australia's social media accounts, and to Australian FB groups.
Thanks for setting this up, @Simon M. Will there also be a written submission collating the nuances of this discussion to feedback to NIH/CDC?
Done! Thank you to everyone involved!
I agree. This is a huge issue (not just for NICE, but everywhere). It is a major obstacle to getting GET/CBT recommendations removed. That's...
I agree that a change in HR is a useful measure for PEM, and perhaps the only objective measure we have right now, so it would be beneficial for...
My brain read this as "postmodern studies" and went down a whole track of wondering what that might look like in biomedical ME/CFS research before...
Chronic Fatigue and Immune Deficiency Syndrome (CFIDS), cellular metabolism, and ionizing radiation: A review of contemporary scientific...
Yes, not much effort expended.
I agree. It's good that this fact sheet doesn't emphasise the need for exercise, pushing through, or challenging false illness beliefs, but there...
And now they want to teach other researchers how to do the same! :banghead:
I noticed that too. Given that the page was updated on Dec, it's unclear whether there is more to come, or whether the Dec 15 update was the new...
CDC updated its "Information for Health Professionals" page in its ME/CFS section on Dec 15. The page now offers links to the following documents:...
Actually, they have been well-funded. They have received several large grants for their work. So lack of funding doesn't explain the issues....
If it doesn't differentiate between ME/CFS and other illnesses, then it is merely a biological abnormality which they have found (of which we have...
I agree. As far as I'm aware, they've yet to do a study comparing ME/CFS with other illnesses (at least, there's nothing published, in any case....
I don't have a question, just wanted to thank all those involved in organising these Q&A/AMA sessions. They're so useful for the community, and no...
Thanks, Graham. Yes, I have that one :)
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