The Australian government is calling for applications for its $3m Targeted Call for Research (TCR) into ME/CFS. TCR’s function similarly to NIH’s...
LDN has been a godsend for me: improved sleep, reduced pain, reduced hyperacusis, reduced numbness/tingling, some increased stamina/reduced PEM...
I’ve only skim read this so far, but I’m feeling sceptical. Their stated hypothesis is that the TRPM3 impairment is the underlying mechanism...
Anthony Pelosi and Louis Appleby raised concerns about this research in BMJ back in 1992. Louis Appleby has just posted their original paper on...
I’m interested in any paper(s) which mentions the challenge for people with ME/CFS who have to juggle their demands of their illness as well as...
Terrific idea! It could be a series of short fact sheets?
Yes. There was only one administrator and that person has been uncontactable for some time which made it difficult to manage the group. So a...
It’s been great to see that the Mason Foundation has acknowledged the NHMRC’s ME/CFS Advisory Committee’s report, followed its recommendations by...
Thanks for posting Hilda’s post about the update, @Andy. I think her conclusion really sums the whole thing up really well, especially that...
I notice that “CFS” is listed under both mental health and neurology. Has it always been that way? Have they decided to simply add CFS to...
Oh, great idea!
Thanks for those threads too, @Sly Saint.
Thanks, @Sarah94. I’m familiar with the Hummingbird scale. I don’t think it’s had much work validating it either? Thanks, @Ravn. I’ll have a...
I’m after some information about scales which measure severity of disease in ME/CFS, in terms of functional impairment (mild vs severe). There...
Yes, it will include a full prevalence estimate for Australia.
Posts on this thread have been moved from different threads links added at the end of the posts The GP education program was possible thanks to a...
A health economics study was one of the recommendations from the NHMRC ME/CFS Advisory Committee, who’s report was released a few months ago. This...
Thanks for this, @Andy! Looking forward to watching!
Systematic review of cytokine studies by NCNED team. Results: A total of 16,702 publications were returned using our search terms. After...
No, Heidi is unlikely to be able to provide any updates on Leighton’s work. That’s a NCNED question.
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