That's the very first thing said in the CFS guidelines under Management: But it gets ignored, just like the recommendation to use heart rate...
I think it's too late to register as a stakeholder. This forum was doing so pretty close to a deadline for it, and that was months ago from what I...
The problem is that it's relatively easy for quacks to deliberately create and exploit methadological flaws in their own research to "prove" that...
That's not acceptable - they have no excuse to exclude patients due to being regional, while allowing regional psychobabblers to attend.
Also was going to be part of MEGA. Here's what he said about PACE: Edited to add: He also co-authored a PACE paper claiming CBT and GET are...
But why's it being run by someone whose interest is in mood disorders? And with the lower patient numbers and extra control group, it looks like...
But the universities are generally not paying attention to the quality of studies produced by their employees. If the universities are responsible...
The primary goal of a journal is to make a profit. Some universities also are profit-driven, but that varies between countries and institutions,...
No one is proposing anarchy, and I think it's extremely likely that processes and standards would remain even if peer review ceases to be the main...
No, it's not what is happening now. The peer review process is still being treated as largely infallible, and post-publication commentary is being...
I think the difference now is that patients are ready to riot if NICE keeps playing games with our lives. There's also been a lot more evidence...
Regarding stakeholder input into the scope: They don't explicitly say that unrelated groups have less of a say, but that might end up being the...
There's nearly 200 stakeholders listed, but only 37 showed up to the first stakeholder meeting. So I'd be willing to bet most of them won't be...
There's a list of the steps taking in a review at...
She blatantly omits PEM while calling it NICE. Should we omit CCC studies too, if she claims to use those criteria while not actually doing so?
They now have a list of stakeholders updated as of February 6 2018: https://www.nice.org.uk/guidance/gid-ng10091/documents/stakeholder-list S4ME...
Another big problem is that they're assessing the evidence before defining the disease. Someone kept bringing that problem up, and apparently kept...
This bit from the 250705 file is interesting: So it would suggest that patient representatives cannot look at the studies, and are entirely...
COPE exists to protect its members from public claims of acting inappropriately. It's pretending to be something which it is not, and there's...
I thought it actually made for a decent contrast, especially since they specified that she didn't have ME. They were showing severe ME patients...
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