I commented on this too, both directly to the M.E. Trust (I use the physio services) and via the online form. Had an email from the M.E. Trust...
Probably going to hit 15,000 today, now at 14,755. I never ask F or F to sign petitions, but I did make an exception with this one.
Over 10,250 this morning, at this rate it is going to end up near to the petition to have the Guidelines reviewed.
Now over 5,000.
Nice Pathways for "CFS/ME" appears to have been updated October 2020....
I'm new to this too. A recent summary of research is here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7463562/ As recommended by the...
@Jonathan Edwards As I said a "histamine bucket" is simply how some patients refer to the way that they manage their symptoms. The doctor I'm...
@Binkie4 So sorry you had such a scary time with the vaccine. With regard to histamine ingestion you describe a pattern that I have seen others...
@Milo Thanks for your comments. I don't think I was clear enough in my initial post. The thread is about mast cells so I concentrated on that...
It seems as if I was in the histamine equivalent of rolling PEM before reducing histamine in my diet. It is now much easier to work out foods that...
List of histamine liberating and low histamine foods that I was advised to refer to....
I've been assessed recently by a doctor at a London hospital for my bladder problems which worsened in 2017. I've had repeated bouts of UTI...
I used to have very painful periods, to the extent that I had to take time off work. I was told by my GP that the problem would resolve after I...
There is a lot of expertise in the group and useful documents. Worth joining if you do FB and are interested in HRM. I learnt a lot from the old...
Interesting programme on iPlayer. Delves back into history of anti-vax, vaccine "hesitancy", Wakefield etc. Mainly focuses on UK and US....
Yes it is dreadful @Trish I've already complained about this lot to trading standards a few years ago. Believe it or not their claims were even...
Unfortunately we have our own offshoot of the LP here in Suffolk. They claim http://www.thebodymindprogramme.com/questions-answers.htm They also...
@Marky I wouldn't discount BB totally. My RHR is mostly in the low 60's again now, which is where it was before the POTS worsened. The tachycardia...
I agree totally with @Snowdrop . In my experience the anxiety is a consequence of the adrenaline surges not the cause. My view is that it is not...
@Marky i experienced something similar when my OI/POTS worsened. I got awful adrenaline surges which made me tachycardic, wired, jittery and with...
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