I get the sense that this is what the World ME Alliance is trying to do. There was clearly some attempt to coordinate the one day thing this year,...
When I asked about minutes after previous meetings, I got very short shrift from Carol Monaghan that they would be agreed at the next meeting and...
Hmm, do we think this may suggest some coordination with World ME Day (or whatever it's called), like last year where the DHSC thing was announced?
I agree, on balance, that it’s a pretty good document.
I can't help but think that in due course, some of those with LC that also satisfy an ME diagnosis, will be doing their darnedest to go with the...
Just updating on this. It's good to be able to echo the experience that @Daisy had of Dr. Barham. Had my appointment a couple of weeks back now...
I had a single CPET back in late 2021 and it was the first test to show that something is actually wrong with my body. Shows that I have what was...
Feels like the APPG leadership (there are 5 or 6 co-chairs) and/or the secretariat, can't organise the proverbial drink up in a brewery. No...
Thanks, good to hear that she knows her stuff. The reports I got previously (MET) were excellent, very thorough, so, is good to hear that...
Curious if anyone has seen Dr. Barham through AfME since she joined? I've got a follow-up appointment on Tuesday (saw Dr. Worthley and Dr....
Just playing catch-up on the recent gems from the PG collection.. Might be slightly off topic, but, am I alone in being somewhat baffled why the...
Excellent question. I could hazard a guess or two, but it probably wouldn't be very scientific or constructive..
What I find amusing (in a warped kind of way) is that nowhere in this, that I recall reading - albeit this morning - do they seem to say that they...
Reading the snippets above, I felt (through my fuggled mind) it starts off ok and I'm thinking, oh, that's suggesting some empathy with the...
I didn't read this initially because of their previous tomes were completely undigestible for my ME brain, but having seen posts here suggesting...
It's genuinely scary. I dip into LC subs periodically and saw someone the other day ask if they could/should exercise themselves so much to the...
Just watching the first 45 seconds makes me want to throw up. Not very helpful or scientific, but, just a statement of fact from where I am...
Thanks Jonathan, appreciate the reply.
Hi, this may sound like a random question on this thread, but it’s not.. Out of interest, is anyone aware of any current practicing UK...
Are all the charities and F-ME on board for the publication with national media outlets lined up for press releases?
Separate names with a comma.
