I’m almost certain it was a timeline mentioned on one of the Decode webinars, but I could obviously be wrong. To my simple mind though, 2 years,...
You'll have to forgive me if this initiative doesn't leave me with any more hope and optimism than I had this morning tbh. Ok, it's scant on...
No, I think her son does, though.
Thanks, it did feel very much a long shot, but had to try. Could probably have been dealt with more sympathetically I feel, at least from my GP...
Having got COVID just under 2 weeks ago, I tried speaking to 111 and my GP about getting anti-virals as I was crapping myself that I would be make...
I’m in shock at seeing such overt coordination of/between the charities.. Hopefully this will be something we see more of under the F-ME banner -...
If one could trust that a questionnaire/answers would not be twisted/misconstrued by those assessing an ME patient, perhaps some of the...
Interesting question. When I was diagnosed in 2020, the proximity of my first becoming ill to the flu vaccine received (it was 24 hours almost to...
Just seen someone on a Facebook group saying they have just been diagnosed and been told by their diagnosing doctor that they should push...
The trouble I also have is working out whether something has any effect, or, whether I have just done a sterling job of resting for a period of...
I’ve tried various supplements, taken at different times of the day, none really seem to make any discernible difference to anything. The only...
Seeing the use of the Chalder Fatigue Scale is enough for me to stop reading any further than the abstract.
I'd like to share some of that optimism, I guess I just don't understand how the PSP would achieve this or anything, as opposed to our...
I'm a bit late to this thread, but I've got a real grump on about the PSP and the survey - sorry if I'm going over ground covered. I've not yet...
Err, yes, I was slightly concerned when I saw how involved AC was in the Purple Book after I had bought it..
I had a private appointment with him earlier this year and whilst he confirmed the prior diagnosis of ME, he also told me that there was a...
This is my local clinic (though have been on the waiting list for >18 months) and I'd heard rumours of the closure at the weekend from some who...
The thing is, who is all this actually aimed at? It feels like PG and others get off on baiting sick people (now there's a mental image I didn't...
I think this is what I'm err'ing towards. As I say, I will try anything (within reason), so happy to give it a go, but my BS radar will be on high...
Hi all, I can see that this is not the most active part of the forum, but thought I'd ask anyhow.. So, I've been seen by a well renowned...
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