Having seen that the web page for my local 'fatigue clinic' on the NHS Trust website (Barking, Havering and Redbridge University Hospitals NHS...
You declare ME on your insurance? I'd not even considered the need to - am only 18 months since diagnosis, so haven't taken travel ins, but...
Hi all, not sure if this is the best place for this post.. Our 8 year old daughter is currently really struggling with the fact that I am ill,...
I've not been firing on all cylinders of late, so haven't been paying too close attention to the RC shenanigans, but it feels like they have gone...
And the media, who could affect this, either: - Don't actually check the background of these eminent doctors who they have been quoting for...
I was just about to share this article, thanks for raising it. So many annoying aspects to this piece - that it's being positioned as supported...
Think it is these.. https://www.nice.org.uk/guidance/ng206/documents/workshop-notes-4
I'd have thought that's most likely, they will probably tags/categories on the post and the CMS does the rest - unless the web admin secretly...
Boom.. https://www.nice.org.uk/guidance/ng206 edit to update link to GL
BBC quotes.. Dr Alastair Miller, an NHS consultant physician in acute medicine and infectious disease in North Cumbria, said exercise programmes...
And Gaurdian https://amp.theguardian.com/society/2021/oct/29/health-watchdog-nice-publishes-delayed-me-guidance BBC...
The Times running article, but behind paywall so can’t see all of it...
Ok, sorry, it's my perception, that they settle - which of course may be incorrect. I'm sure a lot of work is done to try to get more, and perhaps...
Am still new to the ME world, only ill for 2 years next week, so have a fairly short memory of their failings, but unless something significant...
Absolutely, but, I fear, based on past experience, the charities settle for ‘some’ coverage, rather than in depth - I’ll be happy to be proven...
And to add, I think this will be a major test of the charities (who, I feel have a lot to do to redeem themselves with many patients over recent...
Be interesting to see how effective heir media strategy is, particularly F-ME who appear to have engaged a media co based on recent meeting...
Just seen this on Twitter saying GL will be published tomorrow and final has been sent to stakeholders. Not sure if it’s verified though.. [MEDIA]
I saw a well renowned cardiologist a few weeks back who mentioned that breathing is oft very shallow in pwME and PoTS, so one of the options for...
The very tired nerd in me is wondering if I can automate a regular check and to email me when it is updated. Then the really tired nerd says,...
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