One thing I found invaluable when applying were the guides written by both the MEA and AfME The UK ESA paperwork has tixk boxes and then really...
My husband (IM) found himself doing the same. The subject came up at work when the wife of one of his colleagues was diagnosed in her late 50s...
I live in the South East of England & apply with the diagnosis of ME/CFS as that's what is on my medical records. I mention other co morbidities...
Of course the patients Millar et al do have contact with will be in a position where they'll need to keep the clinic onside for fear of upsetting...
Some docs ask this kind of thing out of ignorance but I am equally sure that the more experienced ones ask this sort of thing in this sort of way...
Another potential issue with this type of cr@p. The researchers seem keen to find an association with the imagery of shopping bags and cognitions...
The reverse is also true - cognitive impairment can be extremely stressful, which accelerates the deterioration. Dealing with anything official...
Of course a healthy person might think "oh yeah, grocery shopping. Boring.". One of those things you would rather lounge on the sofa reading a...
Probably not. If there is an "expert" or clinic in the region then the GP would probably refer on for formal diagnosis. If the GP hasn't already...
The patients tell you? Then you can discuss it in further depth...are their symptoms improving, can they do a bit more without payback etc. The...
Do an imaginary task, imagine how it might induce imaginary fatigue...... And there was I thinking unblinded research without objective...
I hope so.....but even if the actual guidelines aren't much different than the draft ones we'll still have our work cut out for us. A change in...
That's precisely the Catch 22 we've been stuck in. While it was "just" patients speaking out about harmful treatments and so on doctors wouldn't...
That's the weirdness of ME. Quite often it's not the strength involved or even stamina when I'm doing something that's the killer - although they...
That's a big part of the problem here - that guidance & support is is lacking. Not telling the patient the truth (& being truthful doesn't mean...
This is where patient support is so important, as important as a truthful & preferably sensitive prognosis. Some might fall into despair. Some...
I think an experienced doc may have some idea but there are never any guarantees. The unknown prognosis also just leaves someone in a limbo of...
There isn't but on the other hand an "I don't know" from your doctor cuts no ice with your boss, bank manager, DWP etc. People need to know...
The thing that really gets me is they way BACME & the rest of the BPS crew constantly get away with avoiding the main issue. Here they go...
I can see both points of view @Peter Trewhitt & @Perrier. On the one hand if we aren't open with people from the get go when their approach to...
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