Whatever the initial intentions were when CBT first became a thing, I fear it's now a confusing mess. To be more medical and scientific then one...
One way they could make significant saving is by the administration wasted in tormenting vulnerable and sick people. I would love to see how much...
Too right. If the peer reviewers and editors can't bring themselves to.apologize maybe they should put their hands in their pockets at David...
But only when the subjective data tells them what they want to hear or can assume. When the subjective data is the patient pointing out that...
The marked contrast in how I feel when those endorphins (or possibly adrenaline? Or both?) kicks in makes it even harder to resist keeping going....
From.@Dolphin's post #872 above Bolding mine. Err.....aren't changes to or loss of taste and smell very common covid symptoms? So they could...
:hug: @ Rosie. That's the trouble, isn't it? It's impossible to observe your cognitive decline until it's happening and then the chances are our...
Not meaning to be contrary @Rosie but my point is that here our experience differs significantly. That difference is meaningful because it means...
I agree the past is in the past and, as long as it doesn't cause problems in the present we should move on. When Simon Wessely tells us to "move...
An organisation who promotes pacing up in the way AfME have are actively causing harm either through patients pushing themselves when they...
I cannot respect an organisation that states one thing and then says something else in documents that harm patients. If AfME were to put their...
As @Trish said, efforts were made. If they're moving in the right direction I'd happily support them in that wherever I could rather than throw...
I had a conversation recently with someone whose daughter "recovered" from ME. the daughter contracted glandular fever in her late teens and it...
Interesting @Rosie. For me this is a very marked deterioration from my best (least worst) day to when my cognitive function is in decline. It's...
It wasn't for me either until I got ME. I'm still okay with it until cognitive decline kicks in. Telling left from right, especially when facing...
I wonder if inability to reverse left and right might be another. For example if I walked down my road and number 12 was in my left & I met...
Sure, but we had discussions with them on here last year. Could have been the year before...definitely well after Chris Clarke. To move on from...
Weird. Neither of those articles really describe the processing problems I seem to experience that then give rise to memory or attention...
Not really. Some attempt was made to sort out some of the documents. AfME reps did sign up here and did enter into some discussion with us....
copied post What happened with AfME and the PACE trial happened. If they had been more proactive in clearing up the mess they contributed to I...
Separate names with a comma.
